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As part of the I AM A VOICE for Epilepsy Awareness™ campaign, the Voice Epilepsy™ podcast series introduces a variety of topics related to epilepsy, including medications, treatment, law, employment, surgery, mental health, stress, and stigma, among many others. Whether you are a person living with epilepsy or you have a personal or professional interest in epilepsy, the Voice Epilepsy™ podcast series is for you! You can find the Voice Epilepsy™ podcast series on iTunes, Google Play, Spotify ...
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The Tuesday Epilepsy Club is hosted by Franziska Thomas author of bestselling 'Fits and Starts: A Memoir of Living With Epilepsy'. Season 1 will include topics like 'Living with Epilepsy' and 'Surviving Medication', as well surprise guest podcasters from around the world.Find out everything you need to know about Epilepsy in this lively, humorous podcast on Tuesday's at 9am. Franziska has more than 30 fits a day and designed a series great for those suffering from Epilepsy, as well an honest ...
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Epilepsy Advocate Radio is one of the many resources offered by Epilepsy Advocate—a community of people and their families living with epilepsy. Epilepsy Advocate Radio provides inspirational stories and commentary from people living with epilepsy in a series of individual interviews, led by Epilepsy Advocate Chris Maxwell. The second season of Epilepsy Advocate Radio will focus on an important theme, “OK is Not Good Enough!” meaning that people living with epilepsy should feel like they are ...
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Epilepsy Talk Radio is a service of epilepsy.com sponsored by the Epilepsy Foundation. Listen here for interviews with leading research and healthcare professionals about epilepsy-related topics. The Epilepsy Foundation, a national non-profit with 48 affiliated organizations throughout the United States, has led the fight against seizures since 1968. The Foundation is an unwavering ally for individuals and families impacted by epilepsy and seizures. The mission of the Epilepsy Foundation is ...
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Hear from XCOPRI® patient, Matt Duffield on his long journey with epilepsy and how advocating for yourself and never giving up hope led him to finding the right treatment option for him. He is joined by his neurologist, Dr. Gregory Krauss to share a perspective on his role in Matt’s treatment journey and overall education on epilepsy. This podcast episode is sponsored by SK Life Science, Inc.For Important Safety Information, visit https://www.xcopri.com/. Please see full Prescribing Informat ...
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This show is for anyone who is raising a child with neurological differences. Raising a child with autism and epilepsy like my daughter Remy, I have learned quite a few lessons about the special needs world and the evolution of growth as a mom. In this show, we discuss all of it. Parenting, marriage, the autism world, epilepsy world and everything in between. Welcome, I am so glad you stopped by
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Does having a seizure mean epilepsy, or is it an isolated neurological event? Failure to recognize diagnostic uncertainty between the epilepsies and non-epileptic events may be a factor in high rates of misdiagnosis. Many patients who have been misdiagnosed as having epilepsy have had previous EEGs interpreted as epileptiform that contributed to the misdiagnosis of epilepsy. Patients are often faced with the need to tolerate complex cocktails of medications over long periods of time causing ...
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show series
 
Welcome to Season Two, Episode Three of our three-part student podcast series Living with Epilepsy: The Student Experience. In this episode, our student ambassador Chloe meets with graduate Abigail Clifford to discuss social support and epilepsy . To find out more about Epilepsy Scotland's #StudentSeptember campaign, please go to www.epilepsyscotla…
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Welcome to Season Two, Episode Two of our three-part student podcast series Living with Epilepsy: The Student Experience. In this episode, our student ambassador Freya discusses Attention Deficit Hyperactivity Disorder (ADHD), Obsessive-Compulsive Disorder (OCD) and Epilepsy. To find out more about Epilepsy Scotland's #StudentSeptember campaign, pl…
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Welcome to Season Two, Episode One of our three-part student podcast series Living with Epilepsy: The Student Experience. In this episode, our student ambassador Chloe met with Psychologist Junhua Ding to discuss sleep, stress and epilepsy. To find out more about Epilepsy Scotland's #StudentSeptember campaign, please go to www.epilepsyscotland.org.…
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In this episode, our Fundraising Manager Gemma Fleet talks to Dianne who’s daughter Emma sadly passed away due to Sudden Unexplained Death In Epilepsy (SUDEP) in April 2023. Dianne shares her memories of Emma. Her life living with epilepsy and how she would like Emma to be remembered. If you have lost a loved one due to SUDEP and need to talk to so…
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In this episode, we talk to SNP MSP Alasdair Allan about how he felt when he was diagnosed with epilepsy and the mental health issues that people with epilepsy can face. We also talk to Epilepsy Scotland’s Wellbeing Manager, Vicki Burns about how an epilepsy diagnosis can impact a person’s mental health and the help and support that can be provided…
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Episode 1: Hear from XCOPRI® patient, Matt Duffield on his long journey with epilepsy and how advocating for yourself and never giving up hope led him to finding the right treatment option for him. He is joined by his neurologist, Dr. Gregory Krauss to share a perspective on his role in Matt’s treatment journey and overall education on epilepsy. Th…
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Changing Medication has to be be one of the hardest things things to do. As I sit here, the first week of half term, my vision blurred for the second full day in a row I wonder what can be done. I don't want to live like this. I don't want my children to live like this, but there are no other medications I can take. I'm stuck between a rock and a h…
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What if it didn't continue? What if you couldn't remember all the things you were supposed to? The following podcast is a light hearted look at what awaits someone who takes Anti Epileptic Drugs (AED's). Why light hearted? Because in these situations, your humour is often all you have. Especially if you start the day every morning with an almost 'b…
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The loss of memory is an ongoing dilemma for people with Epilepsy. Some medications are known to cause confusion and memory loss, but added to this, the condition itself causes the brain function to deteriorate over time. It's logical. What's easy for you, becomes virtually impossible for me. Continually falling on your head, banging your head or s…
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What would it be like to live without Epilepsy? As I write this I haven't had a Tonic Clonic fit for six months. I'm still having regular Partial fits, my head gets fuzzy-I wander around in circles. I get off the bus, but don't remember why, I look confused enough to have people come up to me, ask me if I'm ok. 'I don't know. I don't remember. Mayb…
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It's not easy living with Epilepsy; it's definitely not easy living with mood changes. In this episode Franziska talks about her experiences over the years and how she has learnt to cope with the ups and downs of fits- from medication side effects to the seizures themselves and everything in between. Mood changes involve every one in your life and …
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In this episode of the Voice Epilepsy™ podcast, BC Epilepsy Society staff members, Sonia Ali and Christine Jamieson discuss driving and epilepsy, including how a person living with epilepsy can obtain their driver’s license in the province of British Columbia, as well as some transportation tips for people living with epilepsy who may be unable to …
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In this episode of the Voice Epilepsy™ podcast, BC Epilepsy Society Executive Director, Deirdre Syms, is joined by Dr. Judy Illes to discuss Seizing Hope - High Tech Journeys in Pediatric Epilepsy, a mini-documentary by Neuroethics Canada. Seizing Hope is a mini-documentary that aims to ask the question “Can new technology bring hope to children wh…
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In this episode of the Voice Epilepsy™ podcast, BC Epilepsy Society Executive Director, Deirdre Syms is joined by Niomi Ndirangu, who is the 2022 winner of the Miss Kansas’ Outstanding Teen pageant and is a person living with epilepsy. Listen to this podcast to hear Niomi discuss her win and how she made history as the first African American Miss K…
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In this episode of the Voice Epilepsy™ podcast, Sharareh Saremi, an Advocate at Disability Alliance BC, joins us to discuss the Registered Disability Savings Plan (RDSP). If you would like to learn more about the provincial and federal disability benefits available to people living with epilepsy in BC, visit the Disability Alliance BC website at ww…
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In this episode of the Voice Epilepsy™ podcast, Sharareh Saremi, an Advocate at Disability Alliance BC, joins us to discuss the Disability Tax Credit (DTC). If you would like to learn more about the provincial and federal disability benefits available to people living with epilepsy in BC, visit the Disability Alliance BC website at www.disabilityal…
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In this episode of the Voice Epilepsy™ podcast, Sharareh Saremi, an Advocate at Disability Alliance BC, joins us to discuss Canada Pension Plan Disability (CPP-D). If you would like to learn more about the provincial and federal disability benefits available to people living with epilepsy in BC, visit the Disability Alliance BC website at www.disab…
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In this episode of the Voice Epilepsy™ podcast, Sharareh Saremi, an Advocate at Disability Alliance BC, joins us to discuss the Persons With Disabilities (PWD) Designation. If you would like to learn more about the provincial and federal disability benefits available to people living with epilepsy in BC, visit the Disability Alliance BC website at …
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In this episode of the Voice Epilepsy™ podcast, BC Epilepsy Society Executive Director, Deirdre Syms is joined by the Director of the UBC Interprofessional Health Mentors Program, Dr. Angela Towle, PhD, and long-standing Health Mentor, Lelainia Lloyd to discuss the UBC Interprofessional Health Mentors Program. The UBC Interprofessional Health Mento…
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For some adults living with epilepsy, epilepsy surgery may be a potential option for seizure control. Our podcast on adult epilepsy surgery, entitled “An Overview of Adult Epilepsy Surgery” features the expertise of Dr. Chantelle Hrazdil, MD, FRCPC, who is a pediatric epileptologist at Vancouver General Hospital. Listen to this podcast to learn abo…
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For some children and youth living with epilepsy, epilepsy surgery may be a potential option for seizure control. Our podcast on pediatric epilepsy surgery, entitled “Epilepsy Surgery in Children and Youth: The Benefits of Early Surgery”, features the expertise of Dr. Mary Connolly, MB, BCh, BAO, FRCP(C), FRCP(I), FRCP(Edin) who is a pediatric epil…
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In this episode of the Voice Epilepsy™ podcast, BC Epilepsy Society staff members, Sonia Ali and Christine Jamieson discuss service dogs for people with epilepsy, which are known as Seizure Response Dogs. Listen to this podcast to learn more about what a Seizure Response Dog is and does, as well as information on owning, training, certifying, and o…
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In this episode, we chat to comedian Jake Lambert about his experiences of living with epilepsy and his new Edinburgh Fringe show where he will be talking about his epilepsy. We also talk to Leon Legge about how he manages his epilepsy as well as playing professional sport as part of our #ExcelWithEpilepsy campaign.…
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In this episode we talk to Ross Bennet a former Detective Superintendent with Police Scotland and Michael Sturrock who works in politics as Head of Communications & Outreach. We discuss their experiences of living and managing their epilepsy, support received from their employers and what employers need to do to support people with epilepsy.…
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The Tuesday Epilepsy Club is hosted by Franziska Thomas author of bestselling 'Fits and Starts: A Memoir of Living With Epilepsy'. Season 1 will include topics like 'Stigma' and 'Surviving Medication', and 'Raising Kids when you have Epilepsy'. Listen to this podcast to discover the funny side of bringing up kids whilst trying to stay conscious! Th…
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The Tuesday Epilepsy Club is hosted by Franziska Thomas author of bestselling 'Fits and Starts: A Memoir of Living With Epilepsy'. Season 1 will include topics like 'Stigma' and 'Surviving Medication', as well surprise guest podcasters. People with Epilepsy endure the stigma of their condition every day. For some it's more obvious, for others it's …
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The Tuesday Epilepsy Club is hosted by Franziska Thomas author of bestselling 'Fits and Starts: A Memoir of Living With Epilepsy'. Season 1 will include topics like 'Living with Epilepsy' and 'Surviving Medication', as well surprise guest podcasters. Steph is the singer song-writer of the fabulous soundtrack to 'Fits&Starts' Audiobook. The Audioboo…
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The Tuesday Epilepsy Club is hosted by Franziska Thomas author of bestselling 'Fits and Starts: A Memoir of Living With Epilepsy'. Season 1 will include topics like 'Living with Epilepsy' and 'Surviving Medication', as well surprise guest podcasters from around the world. Find out everything you need to know about Epilepsy in this lively, humorous …
  continue reading
 
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