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Just personal stories and experiences of me living with epilepsy. There will be some vulgarity at times because well epilepsy sucks ass. Cover art photo provided by John O'Nolan on Unsplash: https://unsplash.com/@johnonolan
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Voice Epilepsy

iamavoiceforepilepsy

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As part of the I AM A VOICE for Epilepsy Awareness™ campaign, the Voice Epilepsy™ podcast series introduces a variety of topics related to epilepsy, including medications, treatment, law, employment, surgery, mental health, stress, and stigma, among many others. Whether you are a person living with epilepsy or you have a personal or professional interest in epilepsy, the Voice Epilepsy™ podcast series is for you! You can find the Voice Epilepsy™ podcast series on iTunes, Google Play, Spotify ...
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Epilepsy is a neurological disease that anyone can develop anytime in their life. Epilepsy is something that affects the whole family, not just the person fighting it. It is so much more than medication and seizures. It is a daily battle with no cure.
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The Tuesday Epilepsy Club is hosted by Franziska Thomas author of bestselling 'Fits and Starts: A Memoir of Living With Epilepsy'. Season 1 will include topics like 'Living with Epilepsy' and 'Surviving Medication', as well surprise guest podcasters from around the world.Find out everything you need to know about Epilepsy in this lively, humorous podcast on Tuesday's at 9am. Franziska has more than 30 fits a day and designed a series great for those suffering from Epilepsy, as well an honest ...
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Epilepsy Talk Radio

Epilepsy Talk Radio

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Epilepsy Talk Radio is a service of epilepsy.com sponsored by the Epilepsy Foundation. Listen here for interviews with leading research and healthcare professionals about epilepsy-related topics. The Epilepsy Foundation, a national non-profit with 48 affiliated organizations throughout the United States, has led the fight against seizures since 1968. The Foundation is an unwavering ally for individuals and families impacted by epilepsy and seizures. The mission of the Epilepsy Foundation is ...
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This show is for anyone who is raising a child with neurological differences. Raising a child with autism and epilepsy like my daughter Remy, I have learned quite a few lessons about the special needs world and the evolution of growth as a mom. In this show, we discuss all of it. Parenting, marriage, the autism world, epilepsy world and everything in between. Welcome, I am so glad you stopped by
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Does having a seizure mean epilepsy, or is it an isolated neurological event? Failure to recognize diagnostic uncertainty between the epilepsies and non-epileptic events may be a factor in high rates of misdiagnosis. Many patients who have been misdiagnosed as having epilepsy have had previous EEGs interpreted as epileptiform that contributed to the misdiagnosis of epilepsy. Patients are often faced with the need to tolerate complex cocktails of medications over long periods of time causing ...
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Ever wondered what life feels like for someone with Epilepsy the day after a big tonic clonic fit and some bad injuries? It's not not always easy to get the words out so forgive me if I wobble....physically and mentally! Surviving an Epilepsy Alert Dog...yes, no, maybe? You though every day was chaos with the dog, now wait until you have fits and a…
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For all those of us who have have encountered Epilepsy, stigma continues to be one of the biggest hurdles. Not only do we have to cope with the condition itself, we have to deal with the way it is perceived. Unfortunately, in my experience, public perceptions of Epilepsy are moving at a sloth's pace in many realms! Surviving an Epilepsy Alert Dog..…
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Right, you've got the Assistance Dog....now you have to train it! This podcast tells you where to start, what I did wrong, what hopefully I did right and made me realise more than ever you never stop learning as a dog owner. Surviving an Epilepsy Alert Dog...yes, no, maybe? You though every day was chaos with the dog, now wait until you have fits a…
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There are some things that don't work with Epilepsy....hangovers, babies and hyperactive puppies who tear your house apart, crunch ice cubes and gnaw on your new cupboards. You need to really want a dog if you have Epilepsy because there are going to be some days you can barely move and your dog still needs to be walked. Are you ready for that? We …
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We talk to Epilepsy Scotland’s Youth Development Worker, Kirstyn Cameron, about Epilepsy Scotland’s Youth Work service and the benefits that the Youth Group adventure weekend brings to young people living with epilepsy. We also talk to Epilepsy Scotland’s fundraising team members Linzi Donald and Jane Roberts about the CrowdFunder that has been set…
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Ever wondered how other people with Epilepsy cope or what you can do to help support yourself and your fits? Franziska has had fits for nearly 30 years and this podcast gives the listener some insight into the way she and her family deal with her daily seizures. Some days are great, other days are catastrophic. Every day is different! Coping with S…
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Welcome to Season Two, Episode Three of our three-part student podcast series Living with Epilepsy: The Student Experience. In this episode, our student ambassador Chloe meets with graduate Abigail Clifford to discuss social support and epilepsy . To find out more about Epilepsy Scotland's #StudentSeptember campaign, please go to www.epilepsyscotla…
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Welcome to Season Two, Episode Two of our three-part student podcast series Living with Epilepsy: The Student Experience. In this episode, our student ambassador Freya discusses Attention Deficit Hyperactivity Disorder (ADHD), Obsessive-Compulsive Disorder (OCD) and Epilepsy. To find out more about Epilepsy Scotland's #StudentSeptember campaign, pl…
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Welcome to Season Two, Episode One of our three-part student podcast series Living with Epilepsy: The Student Experience. In this episode, our student ambassador Chloe met with Psychologist Junhua Ding to discuss sleep, stress and epilepsy. To find out more about Epilepsy Scotland's #StudentSeptember campaign, please go to www.epilepsyscotland.org.…
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In this episode, our Fundraising Manager Gemma Fleet talks to Dianne who’s daughter Emma sadly passed away due to Sudden Unexplained Death In Epilepsy (SUDEP) in April 2023. Dianne shares her memories of Emma. Her life living with epilepsy and how she would like Emma to be remembered. If you have lost a loved one due to SUDEP and need to talk to so…
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In this episode, we talk to SNP MSP Alasdair Allan about how he felt when he was diagnosed with epilepsy and the mental health issues that people with epilepsy can face. We also talk to Epilepsy Scotland’s Wellbeing Manager, Vicki Burns about how an epilepsy diagnosis can impact a person’s mental health and the help and support that can be provided…
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Changing Medication has to be be one of the hardest things things to do. As I sit here, the first week of half term, my vision blurred for the second full day in a row I wonder what can be done. I don't want to live like this. I don't want my children to live like this, but there are no other medications I can take. I'm stuck between a rock and a h…
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What if it didn't continue? What if you couldn't remember all the things you were supposed to? The following podcast is a light hearted look at what awaits someone who takes Anti Epileptic Drugs (AED's). Why light hearted? Because in these situations, your humour is often all you have. Especially if you start the day every morning with an almost 'b…
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The loss of memory is an ongoing dilemma for people with Epilepsy. Some medications are known to cause confusion and memory loss, but added to this, the condition itself causes the brain function to deteriorate over time. It's logical. What's easy for you, becomes virtually impossible for me. Continually falling on your head, banging your head or s…
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What would it be like to live without Epilepsy? As I write this I haven't had a Tonic Clonic fit for six months. I'm still having regular Partial fits, my head gets fuzzy-I wander around in circles. I get off the bus, but don't remember why, I look confused enough to have people come up to me, ask me if I'm ok. 'I don't know. I don't remember. Mayb…
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It's not easy living with Epilepsy; it's definitely not easy living with mood changes. In this episode Franziska talks about her experiences over the years and how she has learnt to cope with the ups and downs of fits- from medication side effects to the seizures themselves and everything in between. Mood changes involve every one in your life and …
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In this episode of the Voice Epilepsy™ podcast, BC Epilepsy Society staff members, Sonia Ali and Christine Jamieson discuss driving and epilepsy, including how a person living with epilepsy can obtain their driver’s license in the province of British Columbia, as well as some transportation tips for people living with epilepsy who may be unable to …
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In this episode of the Voice Epilepsy™ podcast, BC Epilepsy Society Executive Director, Deirdre Syms, is joined by Dr. Judy Illes to discuss Seizing Hope - High Tech Journeys in Pediatric Epilepsy, a mini-documentary by Neuroethics Canada. Seizing Hope is a mini-documentary that aims to ask the question “Can new technology bring hope to children wh…
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In this episode of the Voice Epilepsy™ podcast, BC Epilepsy Society Executive Director, Deirdre Syms is joined by Niomi Ndirangu, who is the 2022 winner of the Miss Kansas’ Outstanding Teen pageant and is a person living with epilepsy. Listen to this podcast to hear Niomi discuss her win and how she made history as the first African American Miss K…
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In this episode of the Voice Epilepsy™ podcast, Sharareh Saremi, an Advocate at Disability Alliance BC, joins us to discuss the Registered Disability Savings Plan (RDSP). If you would like to learn more about the provincial and federal disability benefits available to people living with epilepsy in BC, visit the Disability Alliance BC website at ww…
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In this episode of the Voice Epilepsy™ podcast, Sharareh Saremi, an Advocate at Disability Alliance BC, joins us to discuss the Disability Tax Credit (DTC). If you would like to learn more about the provincial and federal disability benefits available to people living with epilepsy in BC, visit the Disability Alliance BC website at www.disabilityal…
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In this episode of the Voice Epilepsy™ podcast, Sharareh Saremi, an Advocate at Disability Alliance BC, joins us to discuss Canada Pension Plan Disability (CPP-D). If you would like to learn more about the provincial and federal disability benefits available to people living with epilepsy in BC, visit the Disability Alliance BC website at www.disab…
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In this episode of the Voice Epilepsy™ podcast, Sharareh Saremi, an Advocate at Disability Alliance BC, joins us to discuss the Persons With Disabilities (PWD) Designation. If you would like to learn more about the provincial and federal disability benefits available to people living with epilepsy in BC, visit the Disability Alliance BC website at …
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In this episode of the Voice Epilepsy™ podcast, BC Epilepsy Society Executive Director, Deirdre Syms is joined by the Director of the UBC Interprofessional Health Mentors Program, Dr. Angela Towle, PhD, and long-standing Health Mentor, Lelainia Lloyd to discuss the UBC Interprofessional Health Mentors Program. The UBC Interprofessional Health Mento…
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For some adults living with epilepsy, epilepsy surgery may be a potential option for seizure control. Our podcast on adult epilepsy surgery, entitled “An Overview of Adult Epilepsy Surgery” features the expertise of Dr. Chantelle Hrazdil, MD, FRCPC, who is a pediatric epileptologist at Vancouver General Hospital. Listen to this podcast to learn abo…
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For some children and youth living with epilepsy, epilepsy surgery may be a potential option for seizure control. Our podcast on pediatric epilepsy surgery, entitled “Epilepsy Surgery in Children and Youth: The Benefits of Early Surgery”, features the expertise of Dr. Mary Connolly, MB, BCh, BAO, FRCP(C), FRCP(I), FRCP(Edin) who is a pediatric epil…
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In this episode of the Voice Epilepsy™ podcast, BC Epilepsy Society staff members, Sonia Ali and Christine Jamieson discuss service dogs for people with epilepsy, which are known as Seizure Response Dogs. Listen to this podcast to learn more about what a Seizure Response Dog is and does, as well as information on owning, training, certifying, and o…
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