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The FabryCast brings the human element of living with a rare disease. It’s a podcast for important conversations that teaches small bits of information, practical insights, and things you can do today to positively impact your life with Fabry. Hear from experts in the field, have the opportunity to “Ask a Doctor Anything” and keep up to date with what's happening in the Fabry space.
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Fabry and Mental Health with Christine Leighland
52:30
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How does Fabry disease impact mental health? What role do anxiety, pain management, and emotional well-being play in the patient journey? Julia Alton and Christine Leyland explore these questions, discussing coping strategies like mindfulness and cognitive behavioral therapy. How can acceptance and self-compassion make a difference? Why is psychoth…
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Decision Fatigue with Jennifer Siedman
35:12
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35:12
Julia Alton and Jennifer Siedman delve into the complexities of decision-making, particularly in the context of chronic illness and rare diseases. They explore the concept of decision fatigue, the emotional toll it takes on caregivers and patients, and the importance of understanding one's decision-making style. Jennifer shares insights from her pe…
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The Critical Role of Biomarkers in Rare Diseases with Christiane Auray-Blais
22:23
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22:23
This conversation delves into the complexities of Fabry disease, a rare lysosomal storage disorder, and the critical role of biomarkers, particularly Lysogb3, in diagnosis and treatment monitoring. The discussion highlights the importance of awareness among healthcare providers, the significance of early detection, and the advancements in research …
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Dr. Robert Hopkin joins us for an in-depth discussion about the relationship between Fabry & sleep.Por FabryCast
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Fabry & Heart Health with Dr. Gavin Oudit
25:48
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25:48
On this episode of the FabryCast it is our pleasure to welcome Dr. Gavin Oudit, a distinguished professor, staff cardiologist, & clinician scientist at the University Of Alberta. With his expertise in heart failure, cardiomyopathies, and the impact of COVID-19 on the cardiovascular system, Dr. Oudit’s insights promise to shed light on the intricate…
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Grieving The Life You Didn’t Have with Sam Wu
53:12
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53:12
Caregiver, On-call Chaplain, & Counsellor, we are honored to be joined by Sam Wu for this episode of the FabryCast. Sam believes that no one should walk alone, especially when they are feeling sick, & offers up some profound positivity for patients & caregivers alike! This is a must listen for anyone struggling in life, as Sam provides hope for tho…
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Behind The Lab Coat: Fabry Testing & Why It Is So Important with Kaye LeMoine
22:37
22:37
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22:37
On this episode we are joined by another hero in the community, National Program Manager at the Canadian Fabry Disease Initiative, Kaye LeMoine. With an immense amount of compassion & knowledge, Kaye takes us behind the lab coat so that patients can better understand Fabry testing & why it is so important to get your tests done. We hope this encour…
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Fabry Care with a Functional Perspective with Dr. Seema Kanwal
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28:26
On this episode of the FabryCast: Vancouver based Naturopath & CFA Board Member, the always amazing Dr. Seema Kanwal, guides listeners towards optimal health via perspective, encouragement, & advice on living with Fabry.Por FabryCast
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Ask A Doctor Anything with Dr. Aneal Khan
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On this episode of the FabryCast we answer questions that have come in from the patient community. Dr. Aneal Khan thoughtfully gives insight to the questions listed below:Is Fabry an inflammatory disease? What comes first; left ventricular hypertrophy (LVH) or cardiac fibrosis? Patients have reported they experience pain when flying on an airplane …
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What is Fabry Disease and how is it passed on in families? Learn about the symptoms patients experience, what parts of the body are affected, and when symptoms usually begin.Have you heard people describe Fabry as “classic, or non-classic?” What does that mean and how do you know what type you have? Learn the foundations of Fabry and why females ha…
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