Naruhodo #304 - Como saber se uma pesquisa científica foi feita de forma ética?

Naruhodo

Conhecer os resultados negativos de um estudo científico é tão importante quanto conhecer seus resultados positivos.
Como saber se ele foi conduzido de forma eticamente correta?
Confira no papo entre o leigo curioso, Ken Fujioka, e o cientista PhD, Altay de Souza.
> OUÇA (58min 36s)
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Naruhodo! é o podcast pra quem tem fome de aprender. Ciência, senso comum, curiosidades, desafios e muito mais. Com o leigo curioso, Ken Fujioka, e o cientista PhD, Altay de Souza.
Edição: Reginaldo Cursino.
http://naruhodo.b9.com.br
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REFERÊNCIAS
What is Patient and Public Involvement in health and social care research?
https://www.rds-sc.nihr.ac.uk/ppi-information-resources/
Health PEI Public and Patient Engagement
https://www.princeedwardisland.ca/en/information/health-pei/health-pei-public-and-patient-engagement
REMARKS BY THE PRESIDENT IN APOLOGY FOR STUDY DONE IN TUSKEGEE
https://clintonwhitehouse4.archives.gov/textonly/New/Remarks/Fri/19970516-898.html
Final Report of the Tuskegee Syphilis Study Ad Hoc Advisory Panel
https://biotech.law.lsu.edu/cphl/history/reports/tuskegee/complete%20report.pdf
AP WAS THERE: Black men untreated in Tuskegee Syphilis Study
https://apnews.com/article/business-science-health-race-and-ethnicity-syphilis-e9dd07eaa4e74052878a68132cd3803a
The Discovery of Penicillin—New Insights After More Than 75 Years of Clinical Use
https://wwwnc.cdc.gov/eid/article/23/5/16-1556_article
Brain health and its social determinants
https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(21)02085-7/fulltext
Development and validation of an instrument to measure patient engagement in Hong Kong Special Administrative Region, China
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6129019/
Realist evaluation of public engagement and involvement in data-intensive health research
https://link.springer.com/article/10.1186/s40900-020-00215-4
Developing patient reference groups within general practice: a mixed-methods study
https://bjgp.org/content/65/632/e177.short
Patient and public engagement in research and health system decision making: A systematic review of evaluation tools
https://onlinelibrary.wiley.com/doi/full/10.1111/hex.12804
Patient and public engagement and involvement in clinical commissioning; socio-material pedagogies of partnership
https://cris.brighton.ac.uk/ws/portalfiles/portal/6418803/DHatfield_Thesis_Final_12June19_Redacted.pdf
Assessing community engagement in Nigeria polio eradication initiative: application of the Consolidated Framework for Implementation Research
https://bmjopen.bmj.com/content/11/8/e048694.abstract
Patient and Family Engagement Approaches for Digital Health Initiatives: Protocol for a Case Study
https://www.researchprotocols.org/2021/7/e24274/
Curso Delineando a Pesquisa Clínica e Estatística aplicada a Psicobiologia:
https://www.cientistica.com/homepage/videos-cientistica
Naruhodo #247 - O que é telemedicina e por que ela é importante?
https://www.b9.com.br/shows/naruhodo/naruhodo-247-o-que-e-telemedicina-e-por-que-ela-e-importante/
Podcasts das #Minas: SINUCA DE BICOS
#MulheresPodcasters
https://open.spotify.com/show/5ks8ResoOV2hh1webdNhA5
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