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S1 E4 - Rare Disease Day with Jo Balfour
Manage episode 407172593 series 3558520
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In this episode of Karger’s The Waiting Room Podcast, we speak with Jo Balfour, the founding member and Managing Director of the UK-based charity Cambridge Rare Disease Network (CRDN). Jo shares with us details of the Action for Rare Diseases Empowerment (ARDEnt) project and its aim to shed light on the unseen impact of the pandemic on people living with rare conditions to protect the existing services for them and identify what lessons can be learned. To learn more about the ARDEnt project and the corresponding report including its findings visit www.camraredisease.org For more podcast episodes from Karger including additional interviews on the subject or rare diseases visit www.karger.com/podcasts and for your fix of all healthcare related news and posts visit thewaitingroom.karger.com
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