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Conteúdo fornecido por Williams Syndrome Association. Todo o conteúdo do podcast, incluindo episódios, gráficos e descrições de podcast, é carregado e fornecido diretamente por Williams Syndrome Association ou por seu parceiro de plataforma de podcast. Se você acredita que alguém está usando seu trabalho protegido por direitos autorais sem sua permissão, siga o processo descrito aqui https://pt.player.fm/legal.
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Ep 36 - Defiantly Choosing Joy with Jess Holsapple and Tabitha Toney

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Conteúdo fornecido por Williams Syndrome Association. Todo o conteúdo do podcast, incluindo episódios, gráficos e descrições de podcast, é carregado e fornecido diretamente por Williams Syndrome Association ou por seu parceiro de plataforma de podcast. Se você acredita que alguém está usando seu trabalho protegido por direitos autorais sem sua permissão, siga o processo descrito aqui https://pt.player.fm/legal.

During Williams Syndrome Awareness Month, it's important to recognize that, while our community has much to celebrate, there are also some very real challenges and tragedies.

Jen and Brendan are joined by Jessica Holsapple and Tabitha Toney, two mothers who each lost their young boys from complications with Williams syndrome. Jess continues to share her journey with Griffin at Life in Griffinland on Instagram and TikTok, and on Facebook. In addition to training the next generation of nurses, Tabitha serves as the camp nurse for the WSA's yearly summer camps for kids and teens in Georgia.

We thank them for their honesty and vulnerability in sharing their stories with us.

Please join us on May 31st and June 1st for the Weekend for Williams fundraiser where we are turning Awareness into Action. For more information and to donate to fund WSA programs and research, go to weekendforwilliams.org.

  continue reading

46 episódios

Artwork
iconCompartilhar
 
Manage episode 420751370 series 3450428
Conteúdo fornecido por Williams Syndrome Association. Todo o conteúdo do podcast, incluindo episódios, gráficos e descrições de podcast, é carregado e fornecido diretamente por Williams Syndrome Association ou por seu parceiro de plataforma de podcast. Se você acredita que alguém está usando seu trabalho protegido por direitos autorais sem sua permissão, siga o processo descrito aqui https://pt.player.fm/legal.

During Williams Syndrome Awareness Month, it's important to recognize that, while our community has much to celebrate, there are also some very real challenges and tragedies.

Jen and Brendan are joined by Jessica Holsapple and Tabitha Toney, two mothers who each lost their young boys from complications with Williams syndrome. Jess continues to share her journey with Griffin at Life in Griffinland on Instagram and TikTok, and on Facebook. In addition to training the next generation of nurses, Tabitha serves as the camp nurse for the WSA's yearly summer camps for kids and teens in Georgia.

We thank them for their honesty and vulnerability in sharing their stories with us.

Please join us on May 31st and June 1st for the Weekend for Williams fundraiser where we are turning Awareness into Action. For more information and to donate to fund WSA programs and research, go to weekendforwilliams.org.

  continue reading

46 episódios

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