A podcast for people with Neurofibromatosis (NF-1, NF2-SWN, and Schwannomatosis)--and the people who care for them.
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Genetics, Research, and Future Therapies for NF1 with Dr. David Gutmann
56:00
56:00
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56:00
In this episode, my guest is Dr. David Gutmann, a leading neurologist specializing in Neurofibromatosis Type 1 (NF1). The conversation delves into Dr. Gutmann's groundbreaking research on the NF1 protein neurofibromin and its role in downregulating the RAS/RAF/MAPK cell signaling pathway. We explore various neurological issues associated with NF1, …
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The Role Of Service Dogs in NF with John Manth
43:08
43:08
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43:08
My guest this episode is John Manth, father of Leah Manth, who was diagnosed with Neurofibromatosis Type 2 (NF2-SWN) in 2007. John discusses their family's journey in seeking treatments and a cure for NF2, his extensive involvement in various NF organizations, and the impactful role of their service dog, Dasher. The conversation covers topics such …
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Strategies for Living with Chronic Pain with Dr. Frank Buono
1:01:54
1:01:54
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1:01:54
This episode features Dr. Frank Buono, an Associate Research Scientist and Lecturer at the Yale School of Medicine, discussing his research on utilizing digital technologies to assist with treatment for individuals with rare diseases like neurofibromatosis (NF), with a focus on managing chronic pain. Dr. Buono talks about his latest project, a mobi…
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Welcome to Decoding NF! This is just a brief introduction to the show. Thanks to our monthly supporters Rosemary AndersonPor Shane Smith
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