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Conteúdo fornecido por Pulmonary Hypertension Association. Todo o conteúdo do podcast, incluindo episódios, gráficos e descrições de podcast, é carregado e fornecido diretamente por Pulmonary Hypertension Association ou por seu parceiro de plataforma de podcast. Se você acredita que alguém está usando seu trabalho protegido por direitos autorais sem sua permissão, siga o processo descrito aqui https://pt.player.fm/legal.
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All About Change
1 Vicki Sokolik - Fighting for Unhoused Youth 31:05
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31:05Vicki Sokolik refuses to be an Ostrich. Her son brought to her attention the crisis of unhoused youth — youth unhoused, not living with a parent/guardian, and not in foster care — in America, and she has been fighting to support this vulnerable population every since. Most active in Tampa Bay, Florida, Vicki is the founder and CEO of the nonprofit Starting Right, Now, which removes barriers for unaccompanied homeless youth to cultivate long-term well-being and self-sufficiency. She is also the author of the new book, “If You See Them: Young, Unhoused, and Alone in America.” Vicki Sokolik joined host Jay Ruderman to discuss the many ways unhoused youth fall through the cracks in our society, how her organization helps them, and also how to build trust with people who could use your help. Episode Chapters (00:00) Intro (01:10) Vicki’s origin story (02:40) What is “unhoused youth?” (06:40) What should a person do if they worry they see an unhoused youth? (08:19) How have conversations around unhoused youth changed in Vicki’s 20 years working with them? (11:02) How do people get the word out and help unhoused youth? (14:55) Vicki’s new book (16:48) How Vicki builds trust (20:10) What do students receive at Starting Right, Now? (22:58) How does Vicki balance advocacy and direct support? (27:53) Starting Right, Now alumni (29:10) Goodbye For video episodes, watch on www.youtube.com/@therudermanfamilyfoundation Stay in touch: X: @JayRuderman | @RudermanFdn LinkedIn: Jay Ruderman | Ruderman Family Foundation Instagram: All About Change Podcast | Ruderman Family Foundation To learn more about the podcast, visit https://allaboutchangepodcast.com/…
PH Insights
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Conteúdo fornecido por Pulmonary Hypertension Association. Todo o conteúdo do podcast, incluindo episódios, gráficos e descrições de podcast, é carregado e fornecido diretamente por Pulmonary Hypertension Association ou por seu parceiro de plataforma de podcast. Se você acredita que alguém está usando seu trabalho protegido por direitos autorais sem sua permissão, siga o processo descrito aqui https://pt.player.fm/legal.
The Pulmonary Hypertension Association presents ”PH Insights,” a podcast amplifying patient voices, sharing meaningful conversations with health care professionals and insights into pulmonary hypertension. Join PHA, people with PH and PH experts, as they share important information to support the PH community.
…
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13 episódios
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Conteúdo fornecido por Pulmonary Hypertension Association. Todo o conteúdo do podcast, incluindo episódios, gráficos e descrições de podcast, é carregado e fornecido diretamente por Pulmonary Hypertension Association ou por seu parceiro de plataforma de podcast. Se você acredita que alguém está usando seu trabalho protegido por direitos autorais sem sua permissão, siga o processo descrito aqui https://pt.player.fm/legal.
The Pulmonary Hypertension Association presents ”PH Insights,” a podcast amplifying patient voices, sharing meaningful conversations with health care professionals and insights into pulmonary hypertension. Join PHA, people with PH and PH experts, as they share important information to support the PH community.
…
continue reading
13 episódios
Todos os episódios
×1 The Role of Exercise in Managing Pulmonary Arterial Hypertension 32:55
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32:55Guest: Akshay Muralidhar, MD, co-director Pulmonary Hypertension Program at Arizona Pulmonary Specialists In this episode, Akshay Muralidhar provides an overview of pulmonary arterial hypertension and how a PAH diagnosis may affect a person’s daily activities and quality of life. He also shares the benefits of exercise and how a safe regimen can improve cardiovascular health and lead to reduced symptoms. Muralidhar provides a summary of the types of exercises suitable for PAH and tips for setting achievable goals. For information on finding an exercise plan that works for you, visit Living with PH . Please consult your physician before making any changes to your exercise routine. to ensure your plan is the right one for you.…
Guest: Michele Freeman, licensed professional counselor and PHA support group leader In this excerpt from PH Insights episode, “Relax and Recharge: Practical Strategies for Managing Stress,” Freeman leads listeners through a guided mindfulness exercise to assist with reducing stress during difficult circumstances.…
1 Relax and Recharge: Practical Strategies for Managing Stress 34:52
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34:52Guest: Michele Freeman, licensed professional counselor and PHA support group leader. In this episode, Freeman provides an overview of the impact of stress and trauma to a person’s body while living with a chronic illness. She then leads listeners through a mindful meditation exercise designed to help manage stress. Additionally, she shares information about the importance of supportive care and why those in the PH community should consider joining a support group. For more information on in-person and virtual support groups discussed in this episode, please visit https://phassociation.org/support/…
1 PHA’s Commitment to Advancing PH Research, Part 2 21:18
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21:18Nadine Al-Naamani, assistant professor of medicine with the Division of Pulmonary, Allergy and Critical Care at University of Pennsylvania and past recipient of the PHA/ATS Research Fellowship and the Aldrighetti Research Award for Young Investigators; incoming Steering Committee Chair of the PHA Registry Matthew R. Lammi, associate professor of medicine of Johns Hopkins University and current Research Committee Chair and PHA Board Member In this episode, Matthew R. Lammi, associate professor of medicine of Johns Hopkins University, current Research Committee Chair and Nadine Al-Naamani, assistant professor of medicine at University of Pennsylvania and past recipient of the PHA/ATS Research Fellowship and the Aldrighetti Research Award for Young Investigators continue the conversation on how research impacts the pulmonary hypertension community. Al-Naamani shares the progression of her career after receiving PHA award and the greater impact of her research on understanding the relationship between body muscle and fat and the underlying disease process in PH. For more information visit, https://phassociation.org/research/…
1 PHA’s Commitment to Advancing PH Research, Part 1 22:46
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22:46Guests: Todd Bull, recipient of 2006 PHA/ATS Research Fellowship Award and incoming Scientific Leadership Council Chair, past Chair of the SLC Research Committee and Rachel Hopper, Associate Director, Pulmonary Hypertension Program, Lucile Packard Children’s Hospital Stanford recipient of Robyn Barst Pediatric PH Research and Mentoring Award In this episode, Todd Bull, professor of medicine and director of University of Colorado Health, Pulmonary Vascular Disease Clinic and Rachel Hopper, associate director of the Pulmonary Hypertension Program at Lucile Packard Children’s Hospital Stanford discuss the significance of research in the field of pulmonary hypertension, with a focus on pediatric studies. They explore the impact of the Pulmonary Hypertension Association's research grant awards on advancing careers and improving patient care. Hopper shares her journey in pediatric cardiology after receiving the Robyn Barst Pediatric PH Research and Mentoring Award – a one-year mentorship opportunity for clinicians and researchers in the field of pediatric PH. She also shares the challenges faced in studying pulmonary hypertension in children, and the importance of continued support for research initiatives.…
1 What Parents and Caregivers Should Know About Pediatric PH 35:30
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35:30Guest: Paul Critser, MD, PhD; Pediatric Cardiologist, Heart Institute Cincinnati Children's Hospital Medical Center In this episode, Critser provides an overview of Pediatric Pulmonary Hypertension and how it may differ from adults living with PH. Critser shares the unique challenges a child living with PH may face from diagnosis to long-term management. He shares his insights on the signs a parent should look for, the latest treatment advancements, research, and the importance of a multidisciplinary approach to care. Tune in to this episode to learn the essential information families should know about pediatric PH.…
1 Navigating life with CTEPH: Experiences with PTE surgery 41:53
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41:53In this episode of the PH Insights podcast, Angela Michelle and Mark Porter share their personal journeys with CTEPH and the pivotal decision to undergo pulmonary thromboendarterectomy surgery. They offer candid insights into their diagnoses, the challenges they faced and the life-changing impact of PTE surgery. Listeners will learn about the emotional and physical toll of CTEPH, the decision-making process behind pursuing surgery and life after the procedure.…
1 What You Should Know About Transplantation 44:14
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44:14Guests: Jordan Whitson, MD, transplant pulmonologist, Duke Pulmonary and Specialty Services Clinic and Diane Ramirez, PHA Board of Trustees member and heart and lung transplant recipient Transplantation may be a treatment option reserved for patients who are not improving on medical therapies. While transplantation can prolong survival, improve quality of life and offer a potential cure for pulmonary hypertension, it also carries risk of significant complications, and many factors need to be considered before going forward. In this episode of PH Insights, Whitson discusses what a transplant recipient can expect before and after surgery. Heart and lung transplant recipient, Diane Ramirez joins him to share her experience with the transplant process and how she’s feeling a year post transplantation.…
1 Navigating Open Enrollment Season: An Overview of Insurance Options and Medicare Changes 27:31
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27:31PHA’s Advocacy and Treatment Access program manager, Jaeger Spratt, guest-hosts this episode for Open Enrollment Season. They invited Kim Everett, a pulmonary arterial hypertension and lupus patient, to talk about her experiences with insurance over the years and share how current Medicare changes have improved her prescription experience. Guest Amy Niles, chief mission officer at the PAN Foundation, tells listeners everything you need to know about Medicare reforms for 2025. Jaeger and Amy also highlight resources like PHA’s Insurance Guide , webinars about Medicare on PHA Classroom, and other places to find additional resources like Medicare.gov (1-800-633-4227, TTY users: 1-877-486-2048), local State Health Insurance Assistance Programs (the SHIP program) for receive free, personalized health insurance counseling, and Patient Advocate Foundation’s case management services (800-532-5274)…
1 A Closer Look at Pulmonary Hypertension and Interstitial Lung Disease, Part 2 20:49
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20:49Guests: Jeff Spiwak, a patient with pulmonary hypertension and interstitial lung disease; and Ahmad Abu Homoud, MD. In this episode of PH Insights, Spiwak, a pulmonary hypertension and interstitial lung disease patient, joins Hamoud to discuss the impact of PH-ILD on daily life and the importance of exercise or physical activity to manage the condition. Homoud and Spiwak share the importance of support and maintaining a positive attitude while living with a chronic illness. The episode concludes with advice for seeking early medical help and a message of hope.…
1 A Closer Look at Pulmonary Hypertension and Interstitial Lung Disease, Part 1 26:53
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26:53Guest: Ahmad Abu Homoud, MD, medical director, Pulmonary Hypertension Center, Jersey Shore University Medical Center; and associate program director, Department of Pulmonary and Critical Care, Shore Pulmonary Physician Associates. In this episode of PH Insights, Homoud discusses the connection between pulmonary hypertension and interstitial lung disease. ILD is a group of disorders that cause scarring (fibrosis) or inflammation of lung tissue, leading to stiffened lungs and difficulty breathing. People with ILD may develop pulmonary hypertension due to a stiff left side of the heart or sleep apnea. Homoud explains the development of PH in ILD, a rare condition that affects about 30% of patients. He also discusses the diagnostic process for both conditions and available treatment options, including medications, oxygen therapy and pulmonary rehabilitation. He also emphasizes the importance of early detection and encourages patients to work closely with their medical team.…
1 Filling in the Blanks: Understanding Pulmonary Hypertension, Part 2 9:49
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9:49Guests: Jenny Yang, MD, and Monica Penaranda, PHA Board of Trustees member and PH patient. In this episode, we hear from Monica Penaranda, who has been living with pulmonary arterial hypertension for 27 years. Diagnosed while pregnant, Penaranda shares her diagnosis journey and discusses the importance of perseverance, proper medical care and finding joy while living with PH. Jenny Yang explains how pregnancy can often reveal undiagnosed PAH, highlighting the critical importance of early detection and specialized care. Tune in to hear Penaranda’s inspiring journey and how advancements in PAH treatment have supported her along the way.…
1 Filling in the Blanks: Understanding Pulmonary Hypertension, Part 1 33:11
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33:11Guest: Jenny Yang, MD; assistant professor of medicine, University of California San Diego Pulmonary hypertension is a complex and underdiagnosed condition that affects the blood vessels in the lungs. Blood vessels can become stiff, damaged or narrow, causing the right side of the heart to work harder to pump blood through. In this inaugural episode of PH Insights, Jenny Yang provides a comprehensive overview of PH, its classifications and common misconceptions associated with the condition. Listen now for valuable insights into PH and new advancements in research and treatment that offer hope to people with PH.…
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