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Episode 2 - "One in a Million"
Manage episode 395624370 series 3538655
Conteúdo fornecido por European Federation of Neurological Associations (EFNA). Todo o conteúdo do podcast, incluindo episódios, gráficos e descrições de podcast, é carregado e fornecido diretamente por European Federation of Neurological Associations (EFNA) ou por seu parceiro de plataforma de podcast. Se você acredita que alguém está usando seu trabalho protegido por direitos autorais sem sua permissão, siga o processo descrito aqui https://pt.player.fm/legal.
Did you know that there are over 400 different neurological conditions? The vast majority of these conditions are extremely rare, making them difficult to diagnose and treat. From a lack of available specialists, to fragmented care pathways, there are too many gaps in healthcare systems for people living with a rare neurological disease to fall through.
In this episode of Brain Health Matters, we’ll hear from three people across Europe living with different rare neurological conditions. We’ll also hear from Astri Arnesen, President here at the European Federation of Neurological Associations (EFNA), who will tell us what organisations like EFNA, along with policy-makers, are doing to counter the challenges faced by the rare disease community.
The Brain Health Matters podcast is written and produced by Elizabeth Cunningham, on behalf of the European Federation of Neurological Associations, with support from Roche, Novartis, Merck, Alexion and Horizon Therapeutics.
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