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Conteúdo fornecido por Katie Wright. Todo o conteúdo do podcast, incluindo episódios, gráficos e descrições de podcast, é carregado e fornecido diretamente por Katie Wright ou por seu parceiro de plataforma de podcast. Se você acredita que alguém está usando seu trabalho protegido por direitos autorais sem sua permissão, siga o processo descrito aqui https://pt.player.fm/legal.
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Kristen St. John

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Manage episode 377784197 series 2295478
Conteúdo fornecido por Katie Wright. Todo o conteúdo do podcast, incluindo episódios, gráficos e descrições de podcast, é carregado e fornecido diretamente por Katie Wright ou por seu parceiro de plataforma de podcast. Se você acredita que alguém está usando seu trabalho protegido por direitos autorais sem sua permissão, siga o processo descrito aqui https://pt.player.fm/legal.

Kristen St. John, whose daughter Marcie was diagnosed with Vascular Ehlers-Danlos Syndrome, or VEDS, shares her and Marcie’s experience with diagnosis and life with VEDS, including a bowel perforation that Marcie had at 4 years old.

Find more information about VEDS, including support groups and medical webinars, at thevedsmovement.org

If you would like to share your story with VEDS, Marfan, Loeys-Dietz, or a similar condition on this podcast, visit

https://calendly.com/d/z7h-2cc-g33

Links mentioned in the episode:

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation programming announcement:

https://marfan.org/2023/08/21/announcing-2023-2024-foundation-programs/

Join a Walk for Victory:

https://marfan.org/walk/

VEDS Zebra Group on Facebook:

https://www.facebook.com/groups/352286631530771

Support

You can support this podcast by subscribing to my Patreon at https://www.patreon.com/Translucentone

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon Holtom
Adventuresinlove4Andie
Ashton Tanner
Ryan Rodarmer
Benjamin Weisman
Scott

Disclaimer

The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer.

Disclaimer

The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer.

Source

  continue reading

110 episódios

Artwork
iconCompartilhar
 
Manage episode 377784197 series 2295478
Conteúdo fornecido por Katie Wright. Todo o conteúdo do podcast, incluindo episódios, gráficos e descrições de podcast, é carregado e fornecido diretamente por Katie Wright ou por seu parceiro de plataforma de podcast. Se você acredita que alguém está usando seu trabalho protegido por direitos autorais sem sua permissão, siga o processo descrito aqui https://pt.player.fm/legal.

Kristen St. John, whose daughter Marcie was diagnosed with Vascular Ehlers-Danlos Syndrome, or VEDS, shares her and Marcie’s experience with diagnosis and life with VEDS, including a bowel perforation that Marcie had at 4 years old.

Find more information about VEDS, including support groups and medical webinars, at thevedsmovement.org

If you would like to share your story with VEDS, Marfan, Loeys-Dietz, or a similar condition on this podcast, visit

https://calendly.com/d/z7h-2cc-g33

Links mentioned in the episode:

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation programming announcement:

https://marfan.org/2023/08/21/announcing-2023-2024-foundation-programs/

Join a Walk for Victory:

https://marfan.org/walk/

VEDS Zebra Group on Facebook:

https://www.facebook.com/groups/352286631530771

Support

You can support this podcast by subscribing to my Patreon at https://www.patreon.com/Translucentone

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon Holtom
Adventuresinlove4Andie
Ashton Tanner
Ryan Rodarmer
Benjamin Weisman
Scott

Disclaimer

The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer.

Disclaimer

The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer.

Source

  continue reading

110 episódios

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