Artwork

Conteúdo fornecido por The Patient Voice Initiative. Todo o conteúdo do podcast, incluindo episódios, gráficos e descrições de podcast, é carregado e fornecido diretamente por The Patient Voice Initiative ou por seu parceiro de plataforma de podcast. Se você acredita que alguém está usando seu trabalho protegido por direitos autorais sem sua permissão, siga o processo descrito aqui https://pt.player.fm/legal.
Player FM - Aplicativo de podcast
Fique off-line com o app Player FM !

Alex Parker shares her Cystic Fibrosis story

43:24
 
Compartilhar
 

Manage episode 381848440 series 3525766
Conteúdo fornecido por The Patient Voice Initiative. Todo o conteúdo do podcast, incluindo episódios, gráficos e descrições de podcast, é carregado e fornecido diretamente por The Patient Voice Initiative ou por seu parceiro de plataforma de podcast. Se você acredita que alguém está usando seu trabalho protegido por direitos autorais sem sua permissão, siga o processo descrito aqui https://pt.player.fm/legal.
Alex Parker was born in country Victoria and diagnosed with Cystic Fibrosis at 6 weeks of age. She had a very normal childhood despite all the rigorous health routines to maintain her health.

But in her early 20s, her health started to deteriorate and she was in and out of hospital with lung infections. The future looked bleak until she was able to access an innovative new medicine.

However, she was only able to access it thanks to the generosity of her grandfather. So Alex and her family worked for more than four years to ensure others like her could access it in Australia.

Despite everything, Alex has established a successful career as a commercial advertising photographer, travelling the world to work on major campaigns.

She lives happily in Melbourne with her partner Michael, 4 year old daughter Ruby and dog Maxi.

Alex is joined by The Patient Voice Initiative Chair, patient advocate Jessica Bean.

  continue reading

12 episódios

Artwork
iconCompartilhar
 
Manage episode 381848440 series 3525766
Conteúdo fornecido por The Patient Voice Initiative. Todo o conteúdo do podcast, incluindo episódios, gráficos e descrições de podcast, é carregado e fornecido diretamente por The Patient Voice Initiative ou por seu parceiro de plataforma de podcast. Se você acredita que alguém está usando seu trabalho protegido por direitos autorais sem sua permissão, siga o processo descrito aqui https://pt.player.fm/legal.
Alex Parker was born in country Victoria and diagnosed with Cystic Fibrosis at 6 weeks of age. She had a very normal childhood despite all the rigorous health routines to maintain her health.

But in her early 20s, her health started to deteriorate and she was in and out of hospital with lung infections. The future looked bleak until she was able to access an innovative new medicine.

However, she was only able to access it thanks to the generosity of her grandfather. So Alex and her family worked for more than four years to ensure others like her could access it in Australia.

Despite everything, Alex has established a successful career as a commercial advertising photographer, travelling the world to work on major campaigns.

She lives happily in Melbourne with her partner Michael, 4 year old daughter Ruby and dog Maxi.

Alex is joined by The Patient Voice Initiative Chair, patient advocate Jessica Bean.

  continue reading

12 episódios

Todos os episódios

×
 
Loading …

Bem vindo ao Player FM!

O Player FM procura na web por podcasts de alta qualidade para você curtir agora mesmo. É o melhor app de podcast e funciona no Android, iPhone e web. Inscreva-se para sincronizar as assinaturas entre os dispositivos.

 

Guia rápido de referências