))
Clare Stuart
Manage episode 423409782 series 3525766
Conteúdo fornecido por The Patient Voice Initiative. Todo o conteúdo do podcast, incluindo episódios, gráficos e descrições de podcast, é carregado e fornecido diretamente por The Patient Voice Initiative ou por seu parceiro de plataforma de podcast. Se você acredita que alguém está usando seu trabalho protegido por direitos autorais sem sua permissão, siga o processo descrito aqui https://pt.player.fm/legal.
Clare Stuart is the Policy and Advocacy Manager for the Mito Foundation, advocating for improvements to healthcare, disability and social support for people living with mito.
She holds a Masters in Public Health and has contributed to policy development at NSW Ministry of Health and managed an Australian rare disease organisation.
Clare played a key role in the foundations of Rare Voices Australia, and was also a steering committee member for the National Strategic Action Plan for Rare Diseases.
Her dedication to improving the lives of those who live with mitochondrial disease and rare conditions is informed by her personal experience as the sister of Lizzie, who lived with a rare genetic condition (tuberous sclerosis complex.)
Clare Stuart https://www.linkedin.com/in/clare-stuart-84344443/
Mito Foundation https://www.mito.org.au/
Mito Foundation Facebook https://www.facebook.com/MitoFoundation/
Mito Foundation LinkedIn https://www.linkedin.com/company/mito-foundation/
Our work at Patient Voice Initiative is only possible thanks to the generous support of our Sponsors; for a full list of both our Gold and Silver contributors, please visit our Website.
Find out more about PVI by visiting our website https://www.patientvoiceinitiative.org/
Produced by The Podcast Boss
12 episódios
Compartilhar
