53: Building Your Grace Muscle with Latasha Doyle

This Is Not What I Ordered: conversations on chronic illness, loss + change

This week on This is Not What I Ordered, I am so excited to share my recent chat with a very special guest: Latasha Doyle. Latasha owns her own copy and content writing agency, but she’s also the resident show notes writer here on the NWIO Team. She has Marfan syndrome, a connective tissue disorder, and opens up about her experience living with this condition her whole life.

Latasha brings her humor and her honesty to the table, and talks candidly about echocardiograms, being “out” with her condition, and how she’s learned to embrace her quirks (read: a passion for productivity tools and schedulers) to help her balance health, work, and life.

This was such a fun conversation, and Latasha’s advice about interrupting social narratives really spoke to me. As a community of people living with health challenges, we internalize so much about what it means to be “healthy” or “normal,” and Latasha shared her process for working through it.

She also shared how her chosen family — her husband and her friends — are constantly showing her what it means to show up and truly love someone. I am so excited to share this interview with all of you, and for you to hear Latasha’s love for life and the deep, deep respect she holds for the condition that many people would consider a burden.