Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire
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CFRI's CF Community Voices is a video podcast series created by and for the cystic fibrosis community.
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A genetic disease Cover art photo provided by Efe Kurnaz on Unsplash: https://unsplash.com/@efekurnaz
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By Brayden and Tyler
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Podcast by Jerry Cahill
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This podcast dives deep into the risks and benefits of attempting gene therapy on cystic fibrosis patients. Listen to see the final decisions made on the matter.
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An original podcast that gets inside the heads of the Cystic Fibrosis Community to talk about all kinds of topics with respect and honesty.
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The Lancet Respiratory Medicine publishes a range of article types in respiratory medicine and critical care. These include Original Research, Reviews, Personal Views, Comments, and News articles. Topics include but are not limited to asthma, COPD, tobacco control, critical care, lung cancer, cystic fibrosis, pneumonia, sarcoidosis, mesothelioma, sleep medicine, and respiratory infections.
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Sickboy is determined to break down the stigma associated with illness and disease. Join Jeremie, Brian and Taylor as they tackle health taboos with people who have experienced them firsthand. Taking the lead from Jeremie's life long battle with Cystic Fibrosis, the three best friends help us understand that sometimes the best way to deal with illness, disease and life is simply to laugh. Follow Sickboy on Instagram & TikTok!
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Podcast by Jerry Unplugged: A Cystic Fibrosis Podcast
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Breaking Through is a monthly narrative podcast produced by the Cystic Fibrosis Foundation's Tomorrow's Leaders group. Breaking Through is meant to help Tomorrow's Leaders members develop professionally, foster community, and learn from others through rich storytelling, while also recruiting and engaging new members.
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My name is Justin. I created this podcast to tell the life of a person with Cystic Fibrosis. I am in my late 30's and run half marathons as well as live the life as best as I can in San Diego, CA.
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A dynamic podcast exploring the different experiences people with cystic fibrosis may face during their lives. Gunnar Esiason joins Tiffany Rich and Lea Faraone, otherwise known as the Salty Cysters, to talk about the in's and out's of cystic fibrosis from some of the anxieties and stresses that patients face to some of the lighter sides of the disease. Breathe In: A Cystic Fibrosis Podcast aims to characterize the disease in a positive way while showcasing the challenges that people with cy ...
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Straight from the Lungs helps to share real stories from real people affected by Cystic Fibrosis.
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When our son was diagnosed with Cystic Fibrosis at six months old we were shocked and devastated. From the first moment seeing his foggy little lungs, we knew this was gonna be a rollercoaster and we weren't wrong. What the CF! was born out of a curiosity to learn more, support others, and share experiences while we navigate our own CF journey. We want to tell the stories of others and answer the FAQ's that come along with a diagnosis. We'll seek the knowledge of experts and those living wit ...
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A dynamic Cystic Fibrosis Podcast, educating people on the different experiences and lives that CFers face. Discussing all sides of CF, including the fearful, the ambitious, the emotional and the challenging. A podcast that is purposely made to educate but more importantly comfort fellow CFers and support the CF community💛
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Cystic fibrosis (CF) is one of the most prevalent global congenital disorders, affecting some 70,000 individuals worldwide and 30,000 children and adults in the United States. While clinical efforts are expanding worldwide to improve diagnostic testing and treatment approaches for this progressive lung disease, targeted therapies for CF against any specific mutation remain elusive. The Cystic Fibrosis in Focus series gathers the latest information from leading medical experts devoted to adva ...
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Jerry Cahill used the short video format to educate and inspire people with cystic fibrosis to utilize exercise to improve health.
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A podcast for those wanting to learn more about health conditions and the personal experience.
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A Pediatric Podcast here to feed pediatric knowledge food to your adult-sized brain hole & provide weight-based dosings of fun.
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The Hook Up is about love, sex and relationships. We answer your questions, learn things together, cry over heartbreak, normalise shit. With Dee Salmin and Pip Rasmussen, who will probably bitch about dating apps. New episode every Tuesday.
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Expert insight and analysis providing information directly relevant to cystic fibrosis care, through topic-focused newsletters summarizing the peer-reviewed literature and accompanying podcasts to illustrate how to apply that information in the clinic. Hosted on Acast. See acast.com/privacy for more information.
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Two friends who are just thinking out loud. Reddit, anonymous, true crime, mental health... We talk about it all, and we talk a lot.
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Join long-term sufferer of Cystic Fibrosis & diabetes, Tim Wotton, who's learnt many survival strategies & uses the power of the mind & presence ('The Gift') to help him deal with adversity, stress & negativity. Anyone with life & health challenges will hugely benefit from what Tim & his remarkable guests have to share...
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Can bacteria communicate with each other, and if they do communicate, how and why do they do so? And how might understanding the mechanisms of bacterial communication be used to inform development of anti-bacterial drugs? In this album scientists involved in pioneering work into bacterial 'quorum sensing'' at Nottingham University in the UK reveal some of the techniques they use and give insight into what they hope to achieve. This material forms part of The Open University course S204 Biolo ...
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Lunch with Pippa Hudson. Time to catch up on what's been happening in the City for both lifestyle and news subjects.
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The Choose Your Attitude® podcast is a source of inspiration and motivation for many, fueled by real stories from real people who have struggled with real challenges. Each podcast — and show guest — reminds you that no matter the challenge, you hold the power of perspective, allowing it to shift your attitude from being held down by the impossible to being propelled with the possible. No struggle is too big to impact the small choice you make of your attitude on how you approach it, all in t ...
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Simon J Green is a Melbourne writer telling stories steeped in the joy of genre. Working in science fiction, horror and comedy, he uses tropes of the fantastic to blow up our social anxieties. Living with cystic fibrosis, Simon is driven by telling dangerously fun stories readers love.
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Genetics isn’t always black and white. And the emotions and decisions surrounding genetic testing can be even more complex. Hosted by genetic counselor Eleanor Griffith, the show brings you the personal experiences of patients and genetic counselors.
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Radio In Vivo
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The Truth About Sales | Klyn Elsbury
Klyn Elsbury | Sales Strategist | Motivational Keynote Speaker
All results are preceded by action. The Truth About Sales tackles the biggest sales challenge that virtually all sales professionals and sales managers face at some point in their career: failure to take consistent action. Klyn combines experience with cystic fibrosis, sales, & recruiting with this no BS action-packed roadmap for your sales success. The Truth About Sales helps sales teams, sales professionals, and sales managers win more often. To get access to Klyn's free sales strategies i ...
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A Pediatric Podcast for Healthcare Providers
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Think Outside The BlueBox Podcast by BlueBox Digital is not just a podcast; it's a movement. Broadcasting from Tampa, FL, we're setting the stage for a revolution in creativity, thought leadership, and entrepreneurship. Our mission? To shine a spotlight on the daring, the innovative, and the visionary - the people who are not just thinking outside the box but are redefining it. Become a Paid Subscriber: https://podcasters.spotify.com/pod/show/bluebox/subscribe
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Becoming a better person (personally) one podcast at a time.
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Marci in the Middle is a podcast about real life and the transitions that come along with it. Here we talk about everything from relationships, to finding yourself and your place in the world, aging, as well as food, faith and everything fun. Just think of me as an older sister who’s gonna share her friends and maybe a few things I’ve learned along the way. Episodes premiere every other Monday and you can always find me on Instagram and Facebook @marciinthemiddle and on the web at marciinthe ...
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Every Monday, Antonio and Joe talk about the things that they find interesting from physics, to philosophy, to technology.
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The State of Health is the podcast where patients put healthcare decision makers, thought leaders, and policy makers in the hot seat.Hosted by Gunnar Esiason, a patient advocate living with cystic fibrosis, The State of Health gives listeners a front row seat to patient advocacy. Gunnar's three decades of surviving inside the American healthcare system has given him a front row seat to the complexities that make health care delivery so challenging. The State of Health will unravel these comp ...
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In this series, Frederick “Rick” L. Greene, MD, FACS, talks to the editors and experts featured in Selected Readings in General Surgery, an American College of Surgeons (ACS) publication that highlights highly relevant and practice-changing information from the world’s most prominent medical journals.
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Leeds Voices is a brand new weekly podcast brought to you by the University of Leeds. Join us as we interview some of the illustrious alumni who studied at the University of Leeds, as well as discussions with the institution's world-class researchers. Follow us on Twitter and Instagram at @leedsalumni or email us at alumni@leeds.ac.uk
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A podcast about life ups and downs and the beauty of it all. If you are looking for some real talk, about real life, with a lot of inspiration, this podcast is for you.
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Our Scientific Director Megan Hall takes questions from the forum and answers them in a live Office Hours session on Zoom.
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This book and subsequent audio companion reflect what I would have wanted when I was studying for the USMLE Step 2 CK exam. One of the major hurdles I faced while studying for my exam was the lack of a single reference resource similar to what existed for the USMLE Step 1 exam at the time of writing this book. This meant I had to use multiple resources which presented information in different formats and with different points of emphasis, resulting in a disorganized study approach. Despite m ...
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A monthly podcast from the European Respiratory Journal, summarising the research findings of a number of papers published in each issue.
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Podcast by Bone Banter
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My Podcast is about how Life occurs to me, and what my say is in the matter. Hopefully you find this thought-provoking, and insightful. My intention is to have Conversations that move Humanity forward. Question everything....including me!!! :-D Support this podcast: https://podcasters.spotify.com/pod/show/dean-jackson/support
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NGO Works to help Cystic Fibrosis patients with Life-Saving Medication
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Pippa speaks to Mare Smit See omnystudio.com/listener for privacy information.Por CapeTalk
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Blake Pavey On Hard Launches, Cystic Fibrosis & Why You Shouldn't Date Comedians
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We catch up with comedian Blake Pavey to chat about how his girlfriend soft launched him, the awkward experience of getting his sperm checked and his advice to anyone thinking of dating a comedian (just don’t).Por Australian Broadcasting Corporation
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Do you know what is needed before you have a lung transplant? Or even how it works? More and more adult CF clinics are explaining the details to adult patients, but if you're a CF parent, there is a lot you may not know. We welcome Dr. Ryan Hadley. Dr. Hadley is at Corewell health in Grand Rapids. He is an assistant Profession of Medicine in pulmon…
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Defying Cystic Fibrosis One Mountain at a Time [Rebroadcast]
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Episode 23: Chloe Hyatt on Cystic Fibrosis & Making the Most of Every Day
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When I first met Chloe, I was immediately drawn to her zest for life. While she has battled CF her whole life, she hasn’t let that slow her down or dim her light. She’s a true beauty with a big smile and wisdom that only comes from persevering through difficult times. In this episode, Chloe shares about the loss of her sister, life with Cystic Fibr…
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EP. 13 | #ScottieStrong | Cystic Fibrosis
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Hello and welcome back to The "Real Friends" Podcast! This week is a HUGE week for us over here at RFP. We are going to be diving DEEP on Ry's life in regard to her perfect daughter Scottie. Scottie was diagnosed with Cystic Fibrosis when she was just 3 weeks old and Ry walks us through what everything was like in the eyes of a mom. Please take the…
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Entertainment: Events/Gigs/Theatre/Podcast/Movies/TV
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Pippa and Producer Maxine unpacks everything from Events, streaming through to TV. See omnystudio.com/listener for privacy information.Por CapeTalk
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Health and Wellness: Paediatric Palliative Care
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Pippa catches up with Michelle Meiring in our Health and Wellness feature on Paediatric Palliative Care See omnystudio.com/listener for privacy information.Por CapeTalk
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Pippa chats with Dr Alastair McAlpine on his book Prescription: Ice Cream See omnystudio.com/listener for privacy information.Por CapeTalk
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On The Couch: Elections ’94 with Veteran Journalist Wendy Knowler
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Pippa speaks to guest on the Elections ’94, with Veteran Journalist Wendy Knowler See omnystudio.com/listener for privacy information.Por CapeTalk
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Pippa speaks Music with Selby Williams See omnystudio.com/listener for privacy information.Por CapeTalk
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DIY: Choosing an Architect for your Renovation Project
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Choosing an architect for your renovation project, Pippa speaks to Architect John Wilson-Harris from Gabriel Fagan Architects See omnystudio.com/listener for privacy information.Por CapeTalk
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Pippa’s Planet – A Guide to Snakes in Winter
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Pippa speaks all things snakes and reptiles with Tyrone Ping See omnystudio.com/listener for privacy information.Por CapeTalk
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On The Couch: Election ’94 recap with Broadcaster and Journalist Anthea Fredericks
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Pippa speaks to broadcaster and journalist Anthea Fredericks on the '94 Elections See omnystudio.com/listener for privacy information.Por CapeTalk
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Episode 11: Scurvy - An Orange a Day Keeps the Scurvy Away
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Scurvy, you hear its name and you think of pirates and old sea voyages. So why did pirates get scurvy? Is it an issue we still face today? If so how do we treat scurvy? To find out more about the history of scurvy and where we are with it today, tune into this week's episode! Check out our website: https://anatomyofillness.com/ References: https://…
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Consumer journalist Wendy Knowler joins Pippa Hudson to discuss senior discounts and an interview with Marilyn Hallett from YOU’VE EARNED IT. YOU’VE EARNED IT is a Cape-based digital media platform for South African 60-plussers. See omnystudio.com/listener for privacy information.Por CapeTalk
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Pippa speaks to Ernest Page See omnystudio.com/listener for privacy information.Por CapeTalk
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On the Couch – Election ’94 recap with Bruce Whitfield
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Pippa speaks to Bruce Whitfield See omnystudio.com/listener for privacy information.Por CapeTalk
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What Happens When One Conjoined Twin Dies?
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In a dance designed for two, what happens when the music stops for one? This week Jer and Tay go OG FGF mode. After introducing the newest member of the team, Haeley, Jer delves into the complex world of conjoined twins, particularly focusing on the rare and heartbreaking scenario where one twin dies but the other lives. We explore the various type…
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Music: World Accordion Day Celebrations
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Pippa speaks to Leon Oosthuizen on all things accordion See omnystudio.com/listener for privacy information.Por CapeTalk
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Family Matters: Autism mom Ntokozo Kalako on her journey with her son
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In Family Matters Pippa speaks to Ntokozo Kalako, an Autism mom on how her community's understanding of her child is evolving See omnystudio.com/listener for privacy information.Por CapeTalk
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Travel: Exploring the tunnels under Cape Town
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Pippa speaks tunnel tours with Matt Weisse See omnystudio.com/listener for privacy information.Por CapeTalk
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On the couch: Election: Veteran journalist and activist Zubeida Jaffer on the 1994 election
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Pippa speaks to veteran journalist and activist Zubeida Jaffer about her experiences around the 1994 elections See omnystudio.com/listener for privacy information.Por CapeTalk
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Should You Check Your Date's Following List?
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When you start seeing someone, do you suss who they’re following on their socials? We debate if lists full of insta baddies is a red flag, or if that's your insecurity talking.Por Australian Broadcasting Corporation
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Unleashed Stories: CF Pet Perspectives (Video)
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In this podcast, you’ll meet the pets that make a big difference in the lives of adults living with cystic fibrosis and hear stories of how these furry friends provide unconditional love, support, and acceptance. The CDC acknowledges that the bond between people and their pets can increase fitness, lower stress, and bring happiness to their owners.…
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Unleashed Stories: CF Pet Perspectives (Audio)
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In this podcast, you’ll meet the pets that make a big difference in the lives of adults living with cystic fibrosis and hear stories of how these furry friends provide unconditional love, support, and acceptance. The CDC acknowledges that the bond between people and their pets can increase fitness, lower stress, and bring happiness to their owners.…
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Comic Con: Carla Mussmann Comic Con show Director
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Pippa speaks to Carla Mussmann Comic Con show director See omnystudio.com/listener for privacy information.Por CapeTalk
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Comic Con Cape Town: Stacey Gaenssler is dressed as Jester from Critical Role
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Pippa speaks to Stacey Gaenssler is dressed as Jester from Critical Role See omnystudio.com/listener for privacy information.Por CapeTalk
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Pippa speaks Esports with High schoolers, Francois Destroo from Paul Roos and Jared Veldtsman from Protea Heights academy. They both played Fifa today See omnystudio.com/listener for privacy information.Por CapeTalk
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Comic Con Cape Town: Veronica Taylor – The Voice of Pokémon character Ash
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Pippa speaks to the voice behind Pokémon characters Ash and his mom Veronica Taylor – Voice Artist See omnystudio.com/listener for privacy information.Por CapeTalk
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Comic Con Cape Town: Nadine Theron - Stuntwoman
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Pippa speaks all things stunts with Nadine Theron stuntwoman See omnystudio.com/listener for privacy information.Por CapeTalk
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Comic Con Cape Town: Boardgame guru Adhil Patel
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Pippa speaks to a Boardgame guru Adhil Patel See omnystudio.com/listener for privacy information.Por CapeTalk
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Comic Con Cape Town: American actor Sean Gunn from Guardians of the Galaxy
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Pippa speaks to American actor Sean Gunn from Guardians of the Galaxy See omnystudio.com/listener for privacy information.Por CapeTalk
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Entertainment: Events & Gigs/Theatre/Podcast/Movies/TV
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17:49
Plan your weekend entertainment, from events, gigs, movies, and theatre to podcasts and TV shows. Events & gigs by Pippa Hudson Theatre by Africa Melane A podcast suggestion by Rafiq Wagiet Movies by Maxine Peters TV by Pippa and Maxine See omnystudio.com/listener for privacy information.Por CapeTalk
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Health and Wellness: World Malaria Day – what to know before you travel
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To mark World Malaria Day Pippa speaks to Jackie Maiman, the CEO of the Independent Community Pharmacy Association. This non-profit gives a voice to privately owned pharmacies across South Africa. See omnystudio.com/listener for privacy information.Por CapeTalk
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On the Couch: Matt Bianco frontman Mark Reilly ready for Cape Town Jazz Festival
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Pippa speaks to Matt Bianco's Mark Reilly ahead of their appearance at the Cape Town International Jazz Festival next weekend. See omnystudio.com/listener for privacy information.Por CapeTalk
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Book Club: Author Karen Horn on her book Prisoners of Jan Smuts
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Pippa speaks to author Karen Horn, a local historian based in Somerset West about her book Prisoners of Jan Smuts, and it’s the story of Italian Prisoners of War. See omnystudio.com/listener for privacy information.Por CapeTalk
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Overview of the different hormones of the endocrine system along the hypothalamic-pituitary-axis. Details regarding the different hormones and associated pathologies will be discussed in subsequent sections.Por Abdillahi Omar, M.D.
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Pippa Hudson speaks to local artist Luna Paige following her release of two full-length albums, one in Afrikaans and another in English. See omnystudio.com/listener for privacy information.Por CapeTalk
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Winning SA high school robotics team returns home
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Pippa Hudson speaks to 17-year old Ethan Buckle and 15-year old Matthew Greenwood from a group of teenagers who won the World Champion Trophy at the FIRST Tech Challenge Robotics Competition in Houston, Texas. See omnystudio.com/listener for privacy information.Por CapeTalk
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Our resident style and design correspondent, Bianca Resnekov, chats to Pippa about the latest in the field. A new lifestyle centre has opened at Spier A Cape Town artist having a big moment in the Big Apple Rapt Indulgence opened in Buitenkant Street, just across from Turth Coffe See omnystudio.com/listener for privacy information.…
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Pippa's Planet: Exploring the gardens at Babylonstoren
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Pippa Hudson is in conversation with master gardener Gundula Deutschländer who has been part of the Babylonstoren team since the very beginning, when the gardens were first established. See omnystudio.com/listener for privacy information.Por CapeTalk
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On the couch: Ballet artistic director Debbie Turner starts a new ballet company
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Pippa Hudson speaks to Debbie Turner about her new ballet company, Cape Ballet Africa. See omnystudio.com/listener for privacy information.Por CapeTalk
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Episode 10: Coeliac disease - Not a Diet Trend
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What is coeliac disease, and how long has it existed? In this episode we discuss the condition in the mouths of many talk show hosts and painted incorrectly in the show “Do Revenge”. Tune in to learn the truth behind this autoimmune condition, and why it is not just a trend. Check out our website: https://anatomyofillness.com/ If you're interested …
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Dr Anne Chang discusses the burden of chronic respiratory diseases in Indigenous people.Por The Lancet
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Are you and your partner joined at hip, to the point where you can’t stand to be apart? Maybe you’re in the thick in the honeymoon stage or maybe you’re in a co-dependent relationship.Por Australian Broadcasting Corporation
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EP 14. | Reddit Threads | No SEX?! Alcohol... and... CUCUMBERS!?
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Hello and welcome back to The "Real Friends" Podcast. This week is all Reddit threads, from not having sex for 15 years.... to CUCUMBERS ARE THE WORST?! It's a wild ride y'all. Don't Forget, May 11th in Nashville TN is the Great strides walk, walking to find a cure, that is hosted by the amazing Cystic Fibrosis Foundation. If you can donate to Scot…
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