Matthew's Astrocytoma Story (Both low-grade and high-grade features)

Aunty M Brain Tumours Talk Show

Today on Aunty M Brain Tumours Talk Show, Matthew White talks about his astrocytoma.

In the months leading up to his diagnosis, Matthew noticed subtle signs of fatigue, but life was busy, and he brushed them off. Everything changed one evening during a football game when he experienced an intense and disorienting sensory episode—a seizure. Over the next few days, he endured multiple seizures, leading to scans that revealed a brain tumour, later identified as an Astrocytoma with both low- and high-grade features. This began a whirlwind journey through surgery, radiotherapy, and chemotherapy, marked by physical, emotional, and familial challenges.

Matthew recounts the complexities of navigating treatment and its impact on his life. From the anxieties surrounding surgery and its uncertain outcomes to the disciplined routine of daily radiotherapy, he reflects on how he found strength in small milestones, medical teams, and his family's unwavering support. Open communication with his children transformed fear into understanding, while candid conversations with healthcare professionals helped him feel actively engaged in his care.

Despite losing his ability to work and drive, Matthew discovered unexpected opportunities and meaningful connections through public transport and everyday interactions. He emphasizes the profound emotional and physical toll of living with a brain tumour yet maintains a focus on resilience, positivity, and cherishing moments with loved ones. Matthew’s journey is one of acceptance, hope, and determination to embrace life despite its uncertainties.