))
It's Not All in My Head: An HHT Story
Manage episode 354738010 series 3413897
Conteúdo fornecido por Raylene Lewis. Todo o conteúdo do podcast, incluindo episódios, gráficos e descrições de podcast, é carregado e fornecido diretamente por Raylene Lewis ou por seu parceiro de plataforma de podcast. Se você acredita que alguém está usando seu trabalho protegido por direitos autorais sem sua permissão, siga o processo descrito aqui https://pt.player.fm/legal.
This podcast starts with a brief explanation of the genetic condition, Hereditary Hemorrhagic Telangiectasia (HHT) and tells the story of Stephany Zumerling who suffered for years without the correct diagnosis. Her medical journey offers lessons we can all learn from and highlights the importance of finding a doctor who takes the time to listen to their patient and investigate symptoms that don't make sense. The podcast ends with lessons learned from Chapter 9 of our current focus book Suffer Strong: written by Katherine and Jay Wolf.
Webpage: https://www.avmalliance.org
Go Fund Me: https://www.gofundme.com/f/avmalliance
Our FB Page: https://www.facebook.com/AVMAlliance
Our FB Group: https://www.facebook.com/groups/325321586185434
Instagram: https://www.instagram.com/avmalliance/
TikTok: https://www.tiktok.com/@avmalliance
YouTube: https://www.youtube.com/@avmalliance
Personal Blog: https://www.caringbridge.org/visit/kylerlewis
Twitter: https://twitter.com/avmawareness
Capítulos
1. It's Not All in My Head: An HHT Story (00:00:00)
2. General Information about HHT (00:00:37)
3. Guest Introduction (00:01:34)
4. Guest Interview Stephany Zumerling (00:02:02)
5. Chapter 9 : The Power of "We" -- Suffer Strong (00:18:34)
6. Inspirational Quote (00:19:11)
7. Inspirational Song (00:19:17)
21 episódios
Compartilhar
