Artwork

Conteúdo fornecido por Gracefully Jen. Todo o conteúdo do podcast, incluindo episódios, gráficos e descrições de podcast, é carregado e fornecido diretamente por Gracefully Jen ou por seu parceiro de plataforma de podcast. Se você acredita que alguém está usando seu trabalho protegido por direitos autorais sem sua permissão, siga o processo descrito aqui https://pt.player.fm/legal.
Player FM - Aplicativo de podcast
Fique off-line com o app Player FM !

From Diagnosis to Advocacy: Alexa's Journey

51:57
 
Compartilhar
 

Manage episode 438920407 series 3407225
Conteúdo fornecido por Gracefully Jen. Todo o conteúdo do podcast, incluindo episódios, gráficos e descrições de podcast, é carregado e fornecido diretamente por Gracefully Jen ou por seu parceiro de plataforma de podcast. Se você acredita que alguém está usando seu trabalho protegido por direitos autorais sem sua permissão, siga o processo descrito aqui https://pt.player.fm/legal.

Have you ever wondered how one navigates life with multiple chronic illnesses? Meet Alexa Sutherland, who has been fighting against juvenile rheumatoid arthritis since she was just 15 months old and later fibromyalgia, ankylosing spondylitis, and the more recent Grave's disease diagnosis. Her journey is a testament to resilience and the power of community. Alexa shares her story, highlighting both the struggles and the support she's found, particularly through memorable connections formed at significant moments, like a poignant meeting in Colorado. Her advocacy on social media shines a light on the often unseen challenges of invisible disabilities, emphasizing the importance of camaraderie among those with similar battles.
Join us as we unpack the complexities of managing multiple chronic illnesses such as Graves' disease, fibromyalgia, RA, and AS. Alexa and I delve into the world of evolving medications and the emotional turmoil that new diagnoses can bring. We'll also touch on the excitement and nerves surrounding my upcoming speaking opportunity in DC, sharing insights and the sometimes-comical confusion that comes with engaging in high-level scientific discussions. This episode promises to provide a heartfelt look at chronic illness management, the hope brought by medical advancements, and the unyielding strength within the chronic illness community.
Blog www.glowlexa.com

IG: https://www.instagram.com/glowlexa/

TT: https://www.tiktok.com/@alexasutherland13

Send us a text

Hi, Jen here! We are so glad to have you back. I want to personally thank those that have signed up with Rare Patient Voice recently. We love your support of the podcast, and this is another way that you can by signing up with Rare Patient Voice through our referral link. Remember, we're here to support you every step of the way.


Support the show

Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website:
https://myspooniesisters.com/

  continue reading

Capítulos

1. Living With Chronic Invisible Illnesses (00:00:00)

2. Navigating Multiple Chronic Illness Diagnoses (00:05:31)

3. Navigating Medical Conference Speaking Invitation (00:10:53)

116 episódios

Artwork
iconCompartilhar
 
Manage episode 438920407 series 3407225
Conteúdo fornecido por Gracefully Jen. Todo o conteúdo do podcast, incluindo episódios, gráficos e descrições de podcast, é carregado e fornecido diretamente por Gracefully Jen ou por seu parceiro de plataforma de podcast. Se você acredita que alguém está usando seu trabalho protegido por direitos autorais sem sua permissão, siga o processo descrito aqui https://pt.player.fm/legal.

Have you ever wondered how one navigates life with multiple chronic illnesses? Meet Alexa Sutherland, who has been fighting against juvenile rheumatoid arthritis since she was just 15 months old and later fibromyalgia, ankylosing spondylitis, and the more recent Grave's disease diagnosis. Her journey is a testament to resilience and the power of community. Alexa shares her story, highlighting both the struggles and the support she's found, particularly through memorable connections formed at significant moments, like a poignant meeting in Colorado. Her advocacy on social media shines a light on the often unseen challenges of invisible disabilities, emphasizing the importance of camaraderie among those with similar battles.
Join us as we unpack the complexities of managing multiple chronic illnesses such as Graves' disease, fibromyalgia, RA, and AS. Alexa and I delve into the world of evolving medications and the emotional turmoil that new diagnoses can bring. We'll also touch on the excitement and nerves surrounding my upcoming speaking opportunity in DC, sharing insights and the sometimes-comical confusion that comes with engaging in high-level scientific discussions. This episode promises to provide a heartfelt look at chronic illness management, the hope brought by medical advancements, and the unyielding strength within the chronic illness community.
Blog www.glowlexa.com

IG: https://www.instagram.com/glowlexa/

TT: https://www.tiktok.com/@alexasutherland13

Send us a text

Hi, Jen here! We are so glad to have you back. I want to personally thank those that have signed up with Rare Patient Voice recently. We love your support of the podcast, and this is another way that you can by signing up with Rare Patient Voice through our referral link. Remember, we're here to support you every step of the way.


Support the show

Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website:
https://myspooniesisters.com/

  continue reading

Capítulos

1. Living With Chronic Invisible Illnesses (00:00:00)

2. Navigating Multiple Chronic Illness Diagnoses (00:05:31)

3. Navigating Medical Conference Speaking Invitation (00:10:53)

116 episódios

Tutti gli episodi

×
 
Loading …

Bem vindo ao Player FM!

O Player FM procura na web por podcasts de alta qualidade para você curtir agora mesmo. É o melhor app de podcast e funciona no Android, iPhone e web. Inscreva-se para sincronizar as assinaturas entre os dispositivos.

 

Guia rápido de referências