Melhores podcasts sobre MECFS (2024)

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21: "Do you need any help?" 23:49

4d ago23:49

23:49

I find myself constantly being grumpy with people who just want to help, and equally grumpy with people who don't offer! It is this contradictory mindset that I explore in this episode which hides a deeper fear of being vulnerable. As I come to terms with my disabilities, the move from being carer to being cared for is hard. As always, I offer you …

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154 - Sean Moran's Healing Journey from Chronic Fatigue 44:17

6d ago44:17

44:17

Join us as we hear from Sean Moran, who opens up about his relentless battle with chronic fatigue syndrome since 2012. Dive deep into Sean's world of endless trials ranging from vitamin C intravenous therapy to unconventional methods like acupuncture and homeopathy. His story is one of unwavering hope and resilience, steering him through years of h…

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20: "There is no such thing as Long Covid" 22:13

11d ago22:13

22:13

In this episode, I try to describe what it feels like to feel isolated with long covid. If you have a chronic illness and sometimes feel alone, this one is for you! Imagine feeling trapped in an invisible world, where the echoes of long COVID linger long after the rest of the world has seemingly moved on. That's been my reality since January 2022. …

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153 - Dr Amir Hadanny - Hyperbaric Solutions to Long Covid Challenges 51:45

13d ago51:45

51:45

What if you could harness the power of oxygen to heal the brain? Uncover the potential of hyperbaric oxygen therapy (HBOT) with Dr. Amir Haddany, a leading neurosurgeon and hyperbaric medicine expert. Dr. Haddany takes us through his research since 2008, sharing how HBOT is transforming treatment for neurological conditions like traumatic brain inj…

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The Craving Brain | New Hope to Overcome Addiction and Despair | Ronald Ruden & Psychosensory Work 23:27

17d ago23:27

23:27

How is it that some people are able to enjoy a drink or smoke and do not get addicted? Why are some people unable to stop? It's all to do with the craving brain... 00:00 Intro - Dealing with craving is not a matter of willpower as it is an unconscious process of the survival response 01:50 Liam Payne - the stimulus of fame and then rejection is ove…

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Light and Life | How to Enhance Healing with Infra-red Light to boost your mitochondria and Lumenate 14:25

17d ago14:25

14:25

See my book Life Illuminated https://mybook.to/LifeIlum for more information. and for the video that inspired this talk https://www.youtube.com/watch?v=yllNLJi1S0Q and Lumenate app (go to Google play store or Apple store). There is a basic free option. 00:00 Intro and how light interacts with mitochondria along the electron transport chain 03:00 La…

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19: "You should be in bed" 28:15

18d ago28:15

28:15

How do you maintain your sense of self when living with a chronic illness like long Covid? Join me, Paul Clarke and my wife Rachel, as we uncover the emotional landscapes and societal hurdles that come with my journey of ill health retirement. In our latest conversation, we confront the misconceptions and judgments that arise when trying to live fu…

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152 - Jenny Adams - Embracing Self-Compassion: Navigating ADHD, Perfectionism, and Chronic Illness 54:34

20d ago54:34

54:34

Ever wondered how the traits of ADHD intersect with perfectionism & chronic illness? Jenny Adams returns to offer insights into the intricate dance between trauma, perfectionism, & health challenges. We unravel how ADHD manifests uniquely in women & discuss the crucial need to recognize these traits to better support those managing chronic illnesse…

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Feeling Embarrassed About Ourselves 4:21

22d ago4:21

4:21

I need to speak to a disgusting and ignorant post by someone on X/Twitter...No one with ME/CFS or Long Covid should EVER feel embarrassed by how they look or how they have to live their life, and no one with ME/CFS or Long Covid should EVER feel like they need to hide what they look like or what their life is like from the public. Fundraiser Link: …

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My 41st Birthday Fundraiser for Ronald W. Davis PhD's ME/CFS Research! 2:34

27d ago2:34

2:34

Hi everyone, I’m doing another fundraiser for Ronald W. Davis PhD.’s ME/CFS research for my 41st birthday! http://spot.fund/FindACureForMEcfs …Since 2020 we have raised $184,000 for Ron’s research solely from my birthday fundraisers! This is incredible and only possible because of all of you…Let’s all come together and get Ron the supplies he needs…

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151 - Dr. Lydia Knutson's Chiropractic Approach to Long Covid 57:59

27d ago57:59

57:59

What if a gentle touch could ignite your body's natural healing abilities? Join us as we sit down with Dr. Lydia Knutson, a pioneer in chiropractic care, to uncover the secrets of her Axial Stability Method (ASM) which marries low-force chiropractic techniques with Eastern energy medicine, offering new hope to those suffering from long COVID and ot…

1
18: "You need to find your baseline" 20:03

27d ago20:03

20:03

What happens when the world moves on, but your body doesn't? From the isolation of feeling misunderstood to the frustration of being dismissed by others, I share my personal journey of living with persistent symptoms. Whether you're personally affected, know someone who is, or simply wish to broaden your understanding, this episode offers an unfilt…

1
150 - From Self-Blame to Self-Discovery 16:09

1M ago16:09

16:09

Could recognizing stress, perfectionism, and a relentless work ethic have unknowingly contributed to my journey with Long Covid? This episode, inspired by a listener's question, takes you through my personal exploration of self-blame and recovery, emphasizing the importance of acknowledging lifestyle factors that play into our health. We'll uncover…

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Commodification of the Healing Journey | The Battle between Science and the Intuitive Art of Healing 25:39

1M ago25:39

25:39

We are in a battle currently where conventional science attempts to explain healing - via neuroscience particularly in a bit to legitimise what, for many, are 'unscientific' or 'pseudoscience' of holistic methods such as psychosensory therapy. The difficulty is in not losing the spontaneity and art of healing which is in many ways a completely oppo…

1
17: "What happens if you get Covid again?" 18:08

1M ago18:08

18:08

What happens when you find yourself facing long COVID for the third time, and the dread of uncertainty looms larger than ever? Join me, as I navigate my way through another bout of illness coinciding with my ill-health retirement. I found myself reflecting on the persistent fear of worsening symptoms and the isolation that comes with a healthcare s…

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Why do Symptoms of Anxiety or Depression Occur? | Underlying Trauma and its Release via Havening 34:22

1M ago34:22

34:22

For the paper I'm referring to go here https://www.sciencedirect.com/science/article/pii/S1550830718301848 for last weeks introductory talk about Ronald Ruden's discovery go here https://youtu.be/kltZn4ji3Tc Ronald has also written two superb books When the Past is Always Present and The Craving Brain For a typical discussion on depression and anxi…

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149 - Resilience and Recovery: Dr. Eleanor Stein on Navigating Chronic Illness and Long Covid 1:00:34

1M ago1:00:34

1:00:34

Dr. Eleanor Stein's journey is one of resilience and transformation and her story is both personal and powerful. Dr. Stein shares how her experiences have shaped her approach to patient care and education. Her insights into societal myths around illness & recovery offer a refreshing perspective, especially for those navigating the complexities of l…

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How Trauma Encodes Memory in the Brain | How it can be Re-wired with Havening - Ronald Ruden's Fix 20:04

1M ago20:04

20:04

Please see this article for a scientific summary of the recent work of Ronald R Ruden in re-consolidating memory https://www.sciencedirect.com/science/article/pii/S1550830718301848#sec0003 This is the havening video i mention at 12.20 https://youtu.be/S6nQiNtuOoc 00:00 intro - Retraumatisation and implicit memory. Triggered memories change your neu…

1
ME/CFS Olympics 7:43

1M ago7:43

7:43

It says a lot about the unique and widely misunderstood challenges that ME/CFS and Long Covid patients face that there could not be an ME/CFS Olympics. Because if we tried to compete and push the physical limits of our bodies like that, all the winners would simply be dead… ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate t…

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148 - Dan Neuffer - Balance, Resilience & how we can prioritise recovery 45:34

2M ago45:34

45:34

Episode 148 of the Long Covid Podcast is the second in this two-part series with Dan Neuffer. Dan is a coach working with people with Long Covid & ME/CFS. He is also an author of "CFS Unravelled" and has developed the "ANS Rewire" Program which has been mentioned by some others on the podcast previously. In this episode we dive into What does recov…

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16: "Are you still tired?" 26:53

2M ago26:53

26:53

Can long COVID turn your life upside down? For me, Paul, it certainly did. Join me as I recount my deeply personal and ongoing battle with long COVID, an invisible illness that has forced me to retire prematurely from my role as a vicar. I recorded this on my retirement day, at the age of 52. Through the lens of my daily struggles with chronic fati…

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The Case Against Reality by Donald R Hoffman Book Review | How Our Senses Deceive Us! 13:14

2M ago13:14

13:14

In this book review I consider the idea that what we perceive as reality is in fact an interface much like seeing icons on your desktop. This is the astounding idea of scientist and philosopher Donald R Hoffman.. In this review find out what I thought of the book and its astonishing hypothesis of 'Fitness Beats Truth' (FBT) theorem and how it's the…

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The Secret to Healing | Interview with hypnotherapist Jenny Lynn on how to break free of suffering 39:49

2M ago39:49

39:49

00:00 How Jenny started working with clients with CFS/ME 03:00 How the patterns became so clear led to explore solutions and begin teaching 05:06 High sensitivity and trauma combine with emotional responsibility 06:40 Jenny's approach interwoven with who she is and holding others in safety - no 'off the peg' solution. But did teach the compassion a…

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The Case against Reality by Donald Hoffman - extra notes... 17:55

2M ago17:55

17:55

Some extra ideas I had after reading this book.. on the 'unintelligence' of the mammalian retinal system' (see at 09:38) Although I have covered some of this in the first recording I thought it was important to counter this argument. *If you're suffering from Chronic pain, fatigue or anxiety, I CAN HELP* CONTACT ME: https://www.alchemytherapies.co.…

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The Trauma and Genius of Lee Miller - how Kate Winslet's new film shows a unique perspective 15:56

2M ago15:56

15:56

The new film about photographer and war correspondent Lee Miller does not shirk the hard stuff. From covering the liberation of Europe (and especially the concentration camps) to her experience as woman excluded and violated in childhood. 00:00 Intro to Lee Miller: model, photographer and war correspondent. 02:56 War breaks out and how she got to b…

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15: "if you could just fill in this form" 21:27

2M ago21:27

21:27

The UK Government has recently once again made it clear that the national welfare benefit budget needs to shrink. What does it feel like for somebody with a chronic illness to apply? I share my deeply personal and often frustrating journey through the maze of seeking validation and support for a condition that many misunderstand. You'll hear about …

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147 - Dan Neuffer - How can we build & ensure resilience in our recoveries? 48:47

2M ago48:47

48:47

Episode 147 of the Long Covid Podcast is the first of a two-part series with Dan Neuffer. Dan is a coach working with people with Long Covid & ME/CFS. He is also an author of "CFS Unravelled" and has developed the "ANS Rewire" Program which has been mentioned by some others on the podcast previously. In this episode we dive into How is recovery pos…

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E24: Snippet - Beyond Knowledge: Unlocking Recovery Progress for ME/CFS, Fibromyalgia, POTS, MCS, PVFS or long-covid 13:31

2M ago13:31

13:31

In over a decade of helping people recover, I have found that whilst knowledge can be key, often other factors are more important. In this video, we delve into why knowledge alone isn't enough for recovery from chronic illness like ME/CFS, Fibromyalgia, POTS, MCS, PVFS (or long-covid). We uncover potential missing pieces in your journey. Discover w…

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14: "You are needed at the hospital urgently" 21:43

2M ago21:43

21:43

What happens when you're grappling with the relentless symptoms of long COVID and suddenly your daughter is hospitalized? In this heartfelt episode, I share the raw realities of balancing my own health struggles while supporting a loved one in crisis. From the emotional and physical exhaustion to the spiritual toll it takes, I discuss the importanc…

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The Two Worlds Of Chronic Illness 3:10

2M ago3:10

3:10

No one ever sees the world of color that lives inside of me because the black void doesn’t let it out. I feel it, smell it, taste it. I exist there in every moment of my life. But the only thing anyone ever sees are the bits of dust of a broken down machine…When the world of color and light shines, this second world coughs and flounders and lays do…

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146 - Dr Becca Kennedy - Chronic Pain & Fatigue Doctor 52:07

2M ago52:07

52:07

In episode 146 I speak to the fabulous Dr. Becca Kennedy, a family medicine physician, who discusses her approach to treating chronic pain and fatigue using evidence-based neuroscience. She emphasizes the mind-body connection, explaining that many medically unexplained symptoms are due to brain signaling rather than structural damage. Kennedy highl…

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13: "When will this end?" 23:52

2M ago23:52

23:52

What happens when you feel like your life has been put on pause indefinitely? Join me, Paul, as I share my raw and personal journey through the relentless battle of long COVID. In the chapter, 'When Will This End?', I open up about the emotional turmoil and physical setbacks that have marked over two years of my life. From fleeting moments of hope …

1
Riding on Hope 0:23

2M ago0:23

0:23

Getting through bad days with ME/CFS, Long Covid, chronic illness, or disability. ✏️ My ME/CFS Blog ❓What is ME/CFS? 👤 My Story 📄 ME/CFS Resources 🙏 Donate to ME/CFS ResearchPor Whitney Dafoe

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E23: Lynne's ME/CFS Recovery Story 1:24:25

2M ago1:24:25

1:24:25

Join us in this transformative episode as Lynne, an experienced nurse, bravely shares her journey to recovery from ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome). As a medical professional, she had been skeptical about the validity of ME/CFS diagnoses. However, Lynne's perspective shifted dramatically after facing years of debilitating…

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Interlude: Your messages 18:13

2M ago18:13

18:13

Thank you so much for your messages! Today, I felt like I had enough energy to go through some of them and record them for this special 'interlude'. Please continue to share what your life is like living with Long Covid, and I will do these catch-up interludes regularly. Watch out for the online forum to complement this podcast, which is launching …

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145 - Jenny Adams - Recovery from ME/CFS 50:03

3M ago50:03

50:03

Episode 145 of the Long Covid Podcast is a chat with Jenny Adams who is here to share her recovery story! We chat through her illness, the things that helped her and the lessons she has learned. We also discuss the work Jenny is doing now, and the links to work with her are below. Free workshop sign up: https://jenny-adams-f409.mykajabi.com/moreene…

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12: "You just need a good nights sleep" 20:35

3M ago20:35

20:35

In this episode, I talk about sleep and how Long Covid affects it, plus some of the things I have found helpful. I give an update on a few products that seem to be working (links below) along with a negative experience I encountered whilst advertising the podcast. Herbal Health, who produce the fabulous 'Ninja Balm' in both regular strength and 'su…

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144 - Dr Sarah's Long Covid Recovery 53:08

3M ago53:08

53:08

Episode 144 of the Long Covid Podcast is a chat with Dr Sarah about her recovery from Long Covid. Sarah tells of her experiences with Covid and her route to Long Covid, as well as some of the things she found that helped. Sarah takes us through her "6 pillars of wellness" that she developed to help her recover - these 6 areas which she thinks are i…

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Athletes and Anxiety | Recorded for the Centre for Integrative Sports Nutrition CISN 1:01:40

3M ago1:01:40

1:01:40

Anxiety is a common problem for athletes: 00:00 Intro and how I got into somatic trauma work 03:40 Chronic anxiety is a natural response to past experience stored in your body in a feedback loop with your limbic brain 06:50 The body cannot lie - it will reveal the truth of your unmet emotional needs from childhood as symptoms 09:20 Symptom suppress…

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The Neuroscience of Flotation Therapy - How it Calms Anxiety in Mind and Body 18:51

3M ago18:51

18:51

I've been looking at innovative new therapies to help calm the mindbody as I'm writing my book Mind Medicine (soon to be published 6th September). Here I give a summary of how and why it works and what my experience was recently. Catch the original paper I am referring to here which outlines the medical benefits https://www.sciencedirect.com/scienc…

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11: "I hope you had a nice holiday" 24:41

3M ago24:41

24:41

I recorded this whilst still very weary after a holiday with the family. I reflect on my week away and the highs and lows of managing in a different environment. If you find this podcast helpful, do let me know. You can message me via the link below. Send Paul a text here Support the show Buy me a coffee Here!…

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The Future of Health | Connecting the Mind and Body | Wholism in Action 17:12

3M ago17:12

17:12

How Health is more than fixing the problem but engaging with a wider perspective - a truly wholistic vision of purpose, beliefs and connection We need to understand we are connected to a universal consciousness... Find me on alchemytherapies.co.uk and patriciaworby.com *If you're suffering from Chronic pain, fatigue or anxiety, I CAN HELP* CONTACT …

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Cooperation not Competition | Understanding Living Systems Book Review | Denis Noble's New Biology 32:58

3M ago32:58

32:58

In my review of this most important book Understanding Living Systems by brothers Raymond and Denis Noble I show you how biology is beginning to move beyond the concept of the 'selfish gene' and turning to a more co-operative view of life. Find out how cells are embedded in organisms and it is our intelligence and agency that allows us to modify ou…

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The Neuroscience of Flotation Therapy | How it Calms Anxiety in Mind and Body 18:51

3M ago18:51

18:51

I've been looking at innovative new therapies to help calm the mindbody as I'm writing my book Mind Medicine (soon to be published 6th September). Here I give a summary of how and why it works and what my experience was recently. *If you're suffering from Chronic pain, fatigue or anxiety, I CAN HELP* CONTACT ME: https://www.alchemytherapies.co.uk/ …

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Dear NHS, Don't Kill Karen Gordon 12:08

3M ago12:08

12:08

A Severe ME/CFS Patient in the UK named Karen Gordon went to the Conquest Hospital Hastings when her Jtube broke in hopes of getting a new one installed. Instead, the hospital has refused to give her a new Jtube or let her go home with Total Parenteral Nutrition (TPN), holding her hostage at the hospital for months. They have now given her an ultim…

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10: "A holiday will do you good" 21:24

3M ago21:24

21:24

I explore the summer holidays and the challenges of planning things with the family. Also, after being told my symptoms might now be permanent I try and explain how I am beginning to come to terms with this. Oh, and an update on a supplement that seems to be working a little bit! Send Paul a text here Support the show Buy me a coffee Here!…

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143 - David Joffe - Overcoming Sleep Challenges in Long Covid Patients 55:10

3M ago55:10

55:10

Unlock the secrets to better sleep and enhanced well-being in our latest episode featuring David Joffe, a leading expert in respiratory and sleep medicine. You'll gain valuable insights into the intricate roles of slow-wave and REM sleep, crucial for both physical restoration and cognitive functions like memory consolidation. David shares his exten…

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9: "Well done, you are out!" 23:21

3M ago23:21

23:21

I talk with my wife, Rachel, about visiting a local festival using mobility aids. We also chat about a recent occupational health review. We also chat through how by being honest, we can manage my condition together. Send Paul a text here Support the show Buy me a coffee Here!Por Paul Clarke

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142 - Jackie's thoughts of the day! 12:05

3M ago12:05

12:05

In episode 142 of the Long Covid Podcast, Jackie takes to the mic to explore her thoughts on Some Things, including almost 3 years since she started the podcast, why boundaries and self-care are so important and more. My youtube channel and the "Ask Jaxter" playlist Long Covid Breathing - see what I have created with Vikki and how you can join our …

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Drops From The Well of Suffering: Honoring Maeve Boothby O’Neill 16:37

3M ago16:37

16:37

It is a travesty that Maeve did not receive nutrition like I received. I was just as sick as Maeve with very similar symptoms, including sensitivity to stimuli like light, sounds, voices and the company of other people in my room and like Maeve, I could not eat enough food to survive. If I was treated the way Maeve was treated, I would be dead just…

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